Sharing news of a lung cancer diagnosis with adult family members and friends: a qualitative study to inform a supportive intervention

PATIENT EDUCATION AND COUNSELING

卷:99

Article

Ewing, Gail¹  Ngwenya, Nothando¹  Benson, John²  Gilligan, David³  Bailey, Susan³  Seymour, Jane⁴  Farquhar, Morag² 

[1] Univ Cambridge, Ctr Family Res, Free Sch Lane, Cambridge CB2 3RQ, England

[2] Univ Cambridge, Primary Care Unit, Dept Publ Hlth & Primary Care, Cambridge CB2 0SR, England

[3] Cambridge Univ Hosp NHS Fdn Trust, Dept Oncol, Cambridge CB2 0QQ, England

[4] Univ Nottingham, Sch Hlth Sci, Nottingham NG7 2UH, England

关键词: Communication;    Cancer;    Qualitative research;    Diagnosis;    Intervention;   

DOI  :  10.1016/j.pec.2015.09.013

来源: Elsevier

【 摘 要 】

Objective: Extensive research exists on breaking bad news by clinicians. This study examines perspectives of patients and those accompanying them at diagnosis-giving of subsequently sharing news of lung cancer with adult family/friends, and views of healthcare professionals, to inform development of a supportive intervention. Methods: Qualitative interviews with 20 patients, 17 accompanying persons; focus groups and interviews with 27 healthcare professionals from four Thoracic Oncology Units. Intervention development workshops with 24 healthcare professionals and six service users with experience of sharing a cancer diagnosis. Framework thematic analysis. Results: Patients and accompanying persons shared news of lung cancer whilst coming to terms with the diagnosis. They recalled general support from healthcare professionals but not support with sharing bad news. Six elements were identified providing a framework for a potential intervention: 1-people to be told, 2-information to be shared, 3-timing of sharing, 4-responsibility for sharing, 5-methods of telling others and 6-reactions of those told. Conclusion: This study identifies the challenge of sharing bad news and a potential framework to guide delivery of a supportive intervention tailored to individual needs of patients. Practice Implications: The identified framework could extend the portfolio of guidance on communication in cancer and potentially in other life-limiting conditions. (C) 2015 Elsevier Ireland Ltd. All rights reserved.

【 授权许可】

Free