Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies

BMC Medical Informatics and Decision Making

Research Article

Peter Hanlon¹  Catherine A. O’Donnell¹  Frances S. Mair¹  Siobhan O’Connor²  Sonia Garcia³  Julie Glanville³ 

[1] General Practice and Primary Care, Institute of Health and Wellbeing, University of Glasgow, 1 Horslethill Rd, G12 9LX, Glasgow, UK;General Practice and Primary Care, Institute of Health and Wellbeing, University of Glasgow, 1 Horslethill Rd, G12 9LX, Glasgow, UK;School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK;York Health Economics Consortium Ltd, York, UK;

关键词: Digital health;    eHealth;    Electronic health records;    Telemedicine;    Mobile applications;    mHealth;    Engagement;    Recruitment;    Barrier;    Facilitator;   

DOI  :  10.1186/s12911-016-0359-3

 received in 2016-08-20, accepted in 2016-09-03,  发布年份 2016

来源: Springer

【 摘 要 】

BackgroundNumerous types of digital health interventions (DHIs) are available to patients and the public but many factors affect their ability to engage and enrol in them. This systematic review aims to identify and synthesise the qualitative literature on barriers and facilitators to engagement and recruitment to DHIs to inform future implementation efforts.MethodsPubMed, MEDLINE, CINAHL, Embase, Scopus and the ACM Digital Library were searched for English language qualitative studies from 2000 – 2015 that discussed factors affecting engagement and enrolment in a range of DHIs (e.g. ‘telemedicine’, ‘mobile applications’, ‘personal health record’, ‘social networking’). Text mining and additional search strategies were used to identify 1,448 records. Two reviewers independently carried out paper screening, quality assessment, data extraction and analysis. Data was analysed using framework synthesis, informed by Normalization Process Theory, and Burden of Treatment Theory helped conceptualise the interpretation of results.ResultsNineteen publications were included in the review. Four overarching themes that affect patient and public engagement and enrolment in DHIs emerged; 1) personal agency and motivation; 2) personal life and values; 3) the engagement and recruitment approach; and 4) the quality of the DHI. The review also summarises engagement and recruitment strategies used. A preliminary DIgital Health EnGagement MOdel (DIEGO) was developed to highlight the key processes involved. Existing knowledge gaps are identified and a number of recommendations made for future research. Study limitations include English language publications and exclusion of grey literature.ConclusionThis review summarises and highlights the complexity of digital health engagement and recruitment processes and outlines issues that need to be addressed before patients and the public commit to digital health and it can be implemented effectively. More work is needed to create successful engagement strategies and better quality digital solutions that are personalised where possible and to gain clinical accreditation and endorsement when appropriate. More investment is also needed to improve computer literacy and ensure technologies are accessible and affordable for those who wish to sign up to them.Systematic review registrationInternational Prospective Register of Systematic Reviews CRD42015029846

【 授权许可】

CC BY   
© The Author(s). 2016