Managing everyday life: Self-management strategies people use to live well with neurological conditions

PATIENT EDUCATION AND COUNSELING

卷:104

Article

Audulv, Asa^1,2  Hutchinson, Susan³  Warner, Grace⁴  Kephart, George⁵  Versnel, Joan⁴  Packer, Tanya L.^4,6,7 

[1] Umea Univ, Dept Nursing, SE-90187 Umea, Sweden

[2] Mid Sweden Univ, Dept Nursing Sci, Sundsvall, Sweden

[3] Dalhousie Univ, Sch Hlth & Human Performance, Halifax, NS, Canada

[4] Dalhousie Univ, Sch Occupat Therapy, Halifax, NS, Canada

[5] Dalhousie Univ, Dept Community Hlth & Epidemiol, Halifax, NS, Canada

[6] Dalhousie Univ, Sch Hlth Adm, Halifax, NS, Canada

[7] Radboud Univ Nijmegen, Med Ctr, Nijmegen, Netherlands

关键词: Neurological conditions;    Patient experience;    Qualitative research;    Self-management;    Self-care;    TEDSS;    Chronic conditions;   

DOI  :  10.1016/j.pec.2020.07.025

来源: Elsevier

【 摘 要 】

Objective: This paper uses the Taxonomy of Everyday Self-management Strategies (TEDSS) to provide insight and understanding into the complex and interdependent self-management strategies people with neurological conditions use to manage everyday life. Methods: As part of a national Canadian study, structured telephone interviews were conducted monthly for eleven months, with 117 people living with one or more neurological conditions. Answers to five open-ended questions were analyzed using qualitative content analysis. A total of 7236 statements were analyzed. Results: Findings are presented in two overarching patterns: 1) self-management pervades all aspects of life, and 2) self-management is a chain of decisions and behaviours. Participants emphasized management of daily activities and social relationships as important to maintaining meaning in their lives. Conclusion: Managing everyday life with a neurological condition includes a wide range of diverse strategies that often interact and complement each other. Some people need to intentionally manage every aspect of everyday life. Practice implications: For people living with neurological conditions, there is a need for health providers and systems to go beyond standard advice for self-management. Self-management support is best tailored to each individual, their life context and the realities of their illness trajectory. (C) 2020 The Authors. Published by Elsevier B.V.

【 授权许可】

Free