Working collaboratively with an online advisory group of people with learning disabilities in covid-times: carrier pigeons, cats and drones

Research Involvement and Engagement

Comment

Sam Clark¹  Paul Scarrott²  David Abbott³  Eppie Leishman⁴  Deborah Quilgars⁴  Stephen Hodgkins⁵  Andy Pollin⁵  Becca Cooper⁵ 

[1] Learning Disability England, Birmingham, UK;My Life My Choice, Oxford, UK;University of Bristol, Bristol, UK;University of York, York, UK;York People First, York, UK;

关键词: Learning disabilities;    Advisory group;    Online research;    Inclusive research;   

DOI  :  10.1186/s40900-023-00494-7

 received in 2023-06-16, accepted in 2023-08-28,  发布年份 2023

来源: Springer

【 摘 要 】

While much attention and emphasis have been given to the role and value of advisory groups in social science research, less has been published on the experiences of those involved in such collaborative efforts. This article reflects on the experiences of academics, collaborators and self-advocacy experts who formed an advisory group for a research project focused on people with learning disabilities’ experiences of renting their own homes. Our paper describes the collaboration, how it changed because of Covid and because of changing relationships, and what worked well and what was challenging. This is in part because these more transparent accounts of working together are sometimes missing from research. We discuss issues relating to bureaucratic research systems which are largely inaccessible to people with learning disabilities and how we approached these. We also highlight the joys and benefits of the research approach that we adopted as well as the challenging and more difficult aspects.

【 授权许可】

CC BY   
© BioMed Central Ltd., part of Springer Nature 2023

【 图 表 】

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