A qualitative exploration of parental perspectives on quality of care for children with serious illnesses

Frontiers in Pediatrics

Pediatrics

Zubair Amin¹  Cristelle Chu-Tian Chow²  Siti Nur Hanim Buang²  Teresa Shu Zhen Tan³  Poh Heng Chong⁴  Felicia Jia Ler Ang⁵  Eric A. Finkelstein⁶ 

[1] Department of Neonatology, Khoo Teck Puat-National University Children’s Medical Institute, National University Hospital, Singapore, Singapore;Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore;Department of Paediatrics, KK Women’s & Children’s Hospital, Singapore, Singapore;Department of Paediatrics, Khoo Teck Puat-National University Children’s Medical Institute, National University Hospital, Singapore, Singapore;HCA Hospice Limited, Singapore, Singapore;Lien Centre for Palliative Care, Programme in Health Services and Systems Research, Duke-NUS Medical School, Singapore, Singapore;Lien Centre for Palliative Care, Programme in Health Services and Systems Research, Duke-NUS Medical School, Singapore, Singapore;Global Health Institute, Duke University, Durham, NC, United States;

关键词: process assessment;    quality of care;    grounded theory;    quality indicators;    patient experience;    parents;    pediatrics;    palliative care;   

DOI  :  10.3389/fped.2023.1167757

 received in 2023-02-16, accepted in 2023-07-10,  发布年份 2023

来源: Frontiers

【 摘 要 】

IntroductionBeing responsive to end-users is essential to good care. Limited in-depth exploration of parental perspectives on care received by children over the course of serious illness has hindered the development of process measures to evaluate quality of care. Our objective was to identify the key process indicators prioritized by parents in the care of seriously ill young children and develop a framework to guide assessment of quality of care.MethodsThis qualitative study followed Charmaz's Constructivist Grounded Theory. In-depth semi-structured interviews were conducted with parents of young children with serious illness in Singapore. Participants were sampled across various healthcare settings, children's ages, and illness categories. Theoretical sampling and constant comparative analysis were used to generate initial, focused, and theoretical codes, which informed construction of a conceptual framework.Results31 parents participated from July 2021 to February 2022. Initial and focused coding generated 64 quality of care indicators describing key care practices, interactions, and procedures. Indicators were categorized under four themes: (1) efficient healthcare structures and standards, (2) professional qualities of healthcare workers, 3. supporting parent-caregivers, and 4. collaborative and holistic care. Theoretical coding led to the development of the “PaRental perspectives on qualIty of care for Children with sErious iLlnESSes (PRICELESS)” framework which summarizes elements contributing to the parental perception of quality of care.DiscussionThe identified process indicators will facilitate the development of standardised parent-reported measures for assessing service quality and benchmarking among providers. The framework provides overall guidance for conceiving quality improvement initiatives.

【 授权许可】

Unknown   
© 2023 Ang, Chow, Chong, Tan, Amin, Buang and Finkelstein.