The National Institutes of Health COVID-19 NeuroDatabank and NeuroBiobank: A National Resource for Learning, Discovery, and Progress

Frontiers in Neurology

Jennifer A. Frontera¹  Andrea B. Troxel²  Carolina Mendoza-Puccini³ 

[1] Department of Neurology, New York University Grossman School of Medicine, New York, NY, United States;Department of Population Health, New York University Grossman School of Medicine, New York, NY, United States;Division of Clinical Research, National Institute of Neurological Disorders and Stroke, Bethesda, MD, United States;

关键词: COVID-19;    registry;    neurology;    epidemiology;    patient privacy;    rare conditions;   

DOI  :  10.3389/fneur.2020.615061

来源: DOAJ

【 摘 要 】

Patients suffering from COVID-19 experience a wide range of symptoms and sequelae, including increasingly recognized neurological problems. A concerted effort is necessary to identify and characterize these issues, whether newly appearing as a result of COVID-19 disease or exacerbations of underlying conditions. A national resource to collect information and/or biospecimens regarding neurological complications of COVID-19 offers an opportunity for broad representation, harmonization, and rapid learning, all while ensuring robust protection of confidential information through the use of global unique identifiers to protect patient privacy.

【 授权许可】

Unknown