Patient-Centered Outcomes Measurement: Does It Require Information From Patients?

Journal of Patient-Centered Research and Reviews

Christine K. Norton¹  David Carrell²  Stephen E. Asche³  Leif I. Solberg³  Juliana O. Tillema³  Jeanette Y. Ziegenfuss³  Ann M. Werner³  John Butler⁴  Rebecca Smith-Bindman⁵  Robin R. Whitebird⁶  Jeffrey G. Jarvik⁷ 

[1] ;Group Health Research Institute, Seattle, WA;HealthPartners Institute, Minneapolis, MN;HealthPartners Medical Group, Minneapolis, MN;University of California, San Francisco, San Francisco, CA;University of St. Thomas, St. Paul, MN;University of Washington, Seattle, WA;

关键词: electronic health records;    patient-reported outcomes;    patient-centered care;   

DOI  :  10.17294/2330-0698.1456

来源: DOAJ

【 摘 要 】

Purpose: Since collecting outcome measure data from patients can be expensive, time-consuming, and subject to memory and nonresponse bias, we sought to learn whether outcomes important to patients can be obtained from data in the electronic health record (EHR) or health insurance claims. Methods: We previously identified 21 outcomes rated important by patients who had advanced imaging tests for back or abdominal pain. Telephone surveys about experiencing those outcomes 1 year after their test from 321 people consenting to use of their medical record and claims data were compared with audits of the participants’ EHR progress notes over the time period between the imaging test and survey completion. We also compared survey data with algorithmically extracted data from claims files for outcomes for which data might be available from that source. Results: Of the 16 outcomes for which patients’ survey responses were considered to be the best information source, only 2 outcomes for back pain and 3 for abdominal pain had kappa scores above a very modest level of ≥ 0.2 for chart audit of EHR data and none for algorithmically obtained EHR/claims data. Of the other 5 outcomes for which claims data were considered to be the best information source, only 2 outcomes from patient surveys and 3 outcomes from chart audits had kappa scores ≥ 0.2. Conclusions: For the types of outcomes studied here, medical record or claims data do not provide an adequate source of information except for a few outcomes where patient reports may be less accurate.

【 授权许可】

Unknown