Public trust and global biobank networks

BMC Medical Ethics

Margaret Otlowski¹  Christine Critchley²  Paul Mason³  Wendy Lipworth⁴  Ian Kerridge⁴  Lisa Dive⁴  Cameron Stewart⁴  Edwina Light⁴  Miriam Wiersma⁵ 

[1] and Centre for Law and Genetics, University of Tasmania;Department of Psychological Sciences, School of Health Sciences, Swinburne University of Technology;Faculty of Law, University of Tasmania;Sydney Health Ethics, University of Sydney;Taronga Institute of Science and Learning, Taronga Conservation Society;

关键词: Biobanks;    Trust;    Globalisation;    Commercialisation;   

DOI  :  10.1186/s12910-020-00515-0

来源: DOAJ

【 摘 要 】

Abstract Background Biobanks provide an important foundation for genomic and personalised medicine. In order to enhance their scientific power and scope, they are increasingly becoming part of national or international networks. Public trust is essential in fostering public engagement, encouraging donation to, and facilitating public funding for biobanks. Globalisation and networking of biobanking may challenge this trust. Methods We report the results of an Australian study examining public attitudes to the networking and globalisation of biobanks. The study used quantitative and qualitative methods in conjunction with bioethical analysis in order to determine factors that may contribute to, and threaten, trust. Results Our results indicate a generally high level of trust in biobanks and in medical research more broadly. Key factors that can reduce perceived trustworthiness of biobanks are commercialisation and involvement in global networking. Conclusions We conclude that robust ethical oversight and governance standards can both promote trust in global biobanking and ensure that this trust is warranted.

【 授权许可】

Unknown