AquaScouts: ePROs Implemented as a Serious Game for Children With Cancer to Support Palliative Care

Frontiers in Digital Health

卷:3

Jana Didi¹  Marcel Meyerheim²  Norbert Graf²  Annette Sander³  Christina Karamanidou⁴  Christine Kakalou⁴  Pantelis Natsiavas⁴  Panos Bonotis⁴  Maria Chatzimina⁵  Giorgos Zacharioudakis⁵  Wiebke Scholz⁶  Johann Erhardt⁶  Daniel Gollmer⁶  Stefan Hoffmann⁶  Tatiana Belova⁶  Robert Schraut⁶  Thomas Kröll⁶  Christian Mauck⁶ 

[1] Centre for Molecular Medicine, Central European Institute of Technology, Masaryk University, Brno, Czechia;

[2] Clinic for Pediatric Hematology-Oncology, Saarland University Hospital and Saarland University Faculty of Medicine, Homburg, Germany;

[3] Department of Paediatric Haematology and Oncology, Hannover Medical School, Hannover, Germany;

[4] Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thessaloniki, Greece;

[5] Institute of Computer Science, Foundation for Research and Technology - Hellas, Heraklion, Greece;

[6] Serious Games Solutions, Promotion Software GmbH, Tübingen, Germany;

关键词: childhood cancer;    serious games;    eHealth;    mHealth;    patient reported outcomes;    palliative care;   

DOI  :  10.3389/fdgth.2021.730948

来源: DOAJ

【 摘 要 】

MyPal is a European initiative focusing on the use of the electronic patient reported outcome (ePRO) measures to enhance patient engagement in palliative cancer care via digital self-reporting palliative care for patients with cancer. As a part of its approach, MyPal also focuses on pediatric patients, implementing a specific digital health platform including a serious game to facilitate the reporting of the symptoms and overall status regarding their quality of life (QoL). To this end, the reduction of psychological burden related to frequent reporting, a.k.a. as “reporting fatigue” has been identified as a priority. In this study, we present the MyPal-CHILD platform, emphasizing on the serious game named AquaScouts and its key design decisions, while also emphasizing on the respective challenges. More specifically, we provide insights on the participatory design approach applied during the design of the platform and the high-level goals defined based on end-user input. In addition, the validation process applied before the use of the platform under real-world conditions is also presented. Finally, we discuss a number of challenges and the prospects of deploying eHealth interventions to support palliative care.

【 授权许可】

Unknown