Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review

Frontiers in Pediatrics

article

Sumedh Bele¹  Ashton Chugh³  Bijan Mohamed⁴  Lorynn Teela⁵  Lotte Haverman⁵  Maria J. Santana¹ 

[1] Department of Community Health Sciences, Cumming School of Medicine, University of Calgary;Harvard Medical School, Harvard University, United States;Department of Pediatrics, Cumming School of Medicine, University of Calgary;School of Physical Therapy, Western University;Psychosocial Department, Emma Children's Hospital Amsterdam UMC, University of Amsterdam

关键词: patient-reported outcome measures (PROMs);    patient-centered care;    pediatrics;    routine clinical care;    health-related quality of life (HRQOL);   

DOI  :  10.3389/fped.2020.00364

学科分类：社会科学、人文和艺术（综合）

来源: Frontiers

【 摘 要 】

Introduction: Integration of patient-reported outcome measures (PROMs) in routine clinical care is growing but lacks consolidated evidence around its impact on pediatric care. This systematic review aims to evaluate the impact of integrating PROMs in routine pediatric clinical care on various outcomes in pediatric clinical care. Data Sources: MEDLINE, Embase, CINAHL, PsycINFO, and Cochrane Library. Web of Science database was searched selectively to ensure extended coverage. Study Selection: We included longitudinal studies reporting on the integration of PROMs in routine pediatric clinical care of chronic diseases. Studies in languages other than English, published prior to the year 2000, and reporting on secondary data were excluded. Data Extraction: Two reviewers independently extracted data from included studies. Extracted data included citation of each study, type of healthcare setting, location of the study, characteristics of patient population, type of chronic disease, name and type of PROM, mode of administration, and reported outcomes. Results: Out of 6,869 articles, titles and abstracts of 5,416 articles and full text of 23 articles were screened in duplicate. Seven articles reporting results from six studies met eligibility criteria. Integration of PROMs increased the identification and discussion around health-related quality of life (HRQOL), especially in psychosocial and emotional domains, but showed mixed results with the impact on quality of care. No studies assessed the impact of integrating PROMs on healthcare utilization. Limitations: Due to significant heterogeneity in the studies, a meta-analysis was not conducted. Conclusions: Integrating PROMs could have a positive impact on HRQOL; however, further studies are required to determine the impact of PROMs in routine pediatric clinical care.

【 授权许可】

CC BY