Understanding Experiences of Fibromyalgia Patients Involved in the Fimouv Study During COVID-19 Lockdown

Frontiers in Psychology

article

Claire Colas¹  Jessica Guyot¹  Audrey Jumel³  Marie-Pierre Vericel²  Nathalie Barth¹  Jessica Manzanares⁶  Julie Goutte⁷  Luc Fontana⁸  Léonard Féasson²  David Hupin^1,11 

[1] UJM-Saint-Etienne Autonomic Nervous System Research Laboratory;Department of Clinical and Exercise Physiology, University Hospital Center;Univ. Lyon, UJM-Saint-Etienne Chaire Santé des Ainés - Ingénierie de la Prévention;Univ. Lyon, UJM-Saint-Etienne Chaire ActiFS;Gerontopole AURA;Pain Center, University Hospital Center;Department of Internal Medicine, University Hospital Center;Department of Occupational and Environmental Medicine, University Hospital Center;Univ. Lyon, Univ. Lyon 1, Univ. St Etienne, Univ. Gustave Eiffel, IFSTTAR, UMRESTTE;UJM-Saint-Etienne Interuniversity Laboratory of Human Movement Biology;Univ. Lyon, UJM-Saint-Etienne Autonomic Nervous System Research Laboratory, SAINBIOSE INSERM;Department of Medicine, K2, Solna, Karolinska Institutet

关键词: COVID-19;    lockdown;    fibromyalgia;    physical activity;    social rhythms;    quality of life;    qualitative study;   

DOI  :  10.3389/fpsyg.2021.645092

学科分类：社会科学、人文和艺术（综合）

来源: Frontiers

【 摘 要 】

Introduction: The COVID-19 pandemic implied a period of lockdown for the general population, increasing the risk to develop some physical or mental disorders. In fibromyalgia patients, these disorders are part of the large clinical picture of the syndrome. Fibromyalgia management is especially based on a regular practice of physical activity. Lockdown imposed a break in rhythms, requiring a restructuring of scheduling. Thus, the present study aimed to investigate the experiences of fibromyalgia patients during COVID-19 lockdown using a qualitative analysis. Method: 19 patients (52 ± 9 years old) who completed a 3-month therapeutic education and/or supervised physical activity program were invited to participate (Fimouv study, Trial registration: ClinicalTrials.gov {"type":"clinical-trial","attrs":{"text":"NCT04107948","term_id":"NCT04107948"}} NCT04107948 ). A sociologist collected data by means of semi-structured interviews and analyzed them using thematic content analysis. Results: Lockdown exacerbated the main symptoms of fibromyalgia, but adjusting the rhythms of life to fluctuations of these symptoms allowed a better quality of life. Patients felt the lack of physical activity and 68% found alternatives to remain physically active. The reduction of social constraints allowed them to better contend with their pathology. Fibromyalgia stopped being a main priority. Conclusion: Lockdown was positively experienced by fibromyalgia patients. They linked the absence of physical activity with increased pain and fatigue. Nevertheless, reducing social constraints could be a key for fibromyalgia management, where symptoms seemed to take less space in everyday life. Clinical Trial Registration:www.ClinicalTrials.gov , identifier: {"type":"clinical-trial","attrs":{"text":"NCT04107948","term_id":"NCT04107948"}} NCT04107948 .

【 授权许可】

CC BY