期刊论文详细信息
Orphanet Journal of Rare Diseases
A retrospective review of the contribution of rare diseases to paediatric mortality in Ireland
Emer Gunne1  Sally Ann Lynch2  Karina Hamilton3  Cliona McGarvey3  Deborah M. Lambert4  Eileen Treacy4 
[1] Children’s Health Ireland, Temple Street, Dublin, Republic of Ireland;Children’s Health Ireland, Temple Street, Dublin, Republic of Ireland;National Rare Disease Office, Mater Misericordiae University Hospital, Dublin, Republic of Ireland;National Paediatric Mortality Register, Dublin, Republic of Ireland;National Rare Disease Office, Mater Misericordiae University Hospital, Dublin, Republic of Ireland;
关键词: Rare disease;    Paediatric;    Mortality;    Health care burden;    Epidemiology;   
DOI  :  10.1186/s13023-020-01574-7
来源: Springer
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