A retrospective review of the contribution of rare diseases to paediatric mortality in Ireland

Orphanet Journal of Rare Diseases

Emer Gunne¹  Sally Ann Lynch²  Karina Hamilton³  Cliona McGarvey³  Deborah M. Lambert⁴  Eileen Treacy⁴ 

[1] Children’s Health Ireland, Temple Street, Dublin, Republic of Ireland;Children’s Health Ireland, Temple Street, Dublin, Republic of Ireland;National Rare Disease Office, Mater Misericordiae University Hospital, Dublin, Republic of Ireland;National Paediatric Mortality Register, Dublin, Republic of Ireland;National Rare Disease Office, Mater Misericordiae University Hospital, Dublin, Republic of Ireland;

关键词: Rare disease;    Paediatric;    Mortality;    Health care burden;    Epidemiology;   

DOI  :  10.1186/s13023-020-01574-7

来源: Springer

【 授权许可】

CC BY