Optimizing of a question prompt list to improve communication about the heart failure trajectory in patients, families, and health care professionals

BMC Palliative Care

Anna Sandgren¹  Anna Strömberg²  Lisa Hjelmfors³  Tiny Jaarsma³  Anna Milberg⁴  Martje H. L. van der Wal⁵  Jan Mårtensson⁶  Maria Friedrichsen⁷ 

[1] Center for Collaborative Palliative Care, Department of Health and Caring Sciences, Linnaeus University, Växjö, Sweden;Department of Health, Medicine and Caring Sciences and Department of Cardiology, Linköping University, Linköping, Sweden;Department of Health, Medicine and Caring Sciences, Division of Nursing Sciences and Reproductive Health, Linköping University, Linköping, Sweden;Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine, Linköping University, Linköping, Sweden;Department of Health, Medicine and Caring Sciences, Linköping University, Linköping, Sweden;Department of Cardiology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands;Department of Nursing, School of Health and Welfare, Jönköping University, Jönköping, Sweden;Palliative Education & Research Centre, Vrinnevi hospital, Norrköping, Sweden;Department of Advanced Palliative Home Care, Vrinnevi hospital, Norrköping, Sweden;

关键词: Heart failure;    Illness trajectory;    End-of-life care;    Communication;    Question prompt list;   

DOI  :  10.1186/s12904-020-00665-3

来源: Springer

【 摘 要 】

BackgroundThe aim of this study was to optimize a Question Prompt List which is designed to improve communication about the heart failure trajectory among patients, family members, and health care professionals.MethodsData were collected in a two-round Delphi survey and a cross-sectional survey, including patients with heart failure, their family members, and health care professionals working in heart failure care in Sweden and the Netherlands. Acceptability for and demand of the Question Prompt List were assessed.ResultsA total of 96 patients, 63 family members and 26 health care professionals participated in the study. Regarding acceptability, most of the original questions were found to be relevant by the participants for inclusion in the Question Prompt List but some cultural differences exist, which resulted in two versions of the list: a Swedish version including 33 questions and a Dutch version including 38 questions. Concerning demand, participants reported that they were interested in discussing the questions in the revised Question Prompt List with a physician or a nurse. Few patients and family members reported that they were worried by the questions in the Question Prompt List and hence did not want to discuss the questions.ConclusionsThis Question Prompt List has successfully been adapted into a Swedish version and a Dutch version and includes questions about the HF trajectory which patients, their families, and health care professionals perceived to be relevant for discussion in clinical practice. Overall, patients and family members were not worried about the content in the Question Prompt List and if used in accordance with patients’ and family members’ preferences, the Question Prompt List can help to improve communication about the heart failure trajectory.

【 授权许可】

CC BY