Patient-reported outcome measures in a population of medically indigent patients with systemic lupus erythematosus in Puerto Rico:

SAGE Open Medicine

Diana VRodríguez-Rivera¹ 

关键词: Systemic lupus erythematosus;    patient-reported outcomes;    quality of life;    underserved population;    Puerto Rico;   

DOI  :  10.1177/2050312116670927

学科分类：医学（综合）

来源: Sage Journals

【 摘 要 】

Objective:To determine patient-reported outcomes measures in indigent patients with systemic lupus erythematosus receiving their healthcare through the Puerto Rico government managed care system and compare these measures with non-indigent patients treated in a private fee-for-service setting.Methods:A cross-sectional study was conducted in a cohort of 98 Puerto Ricans with systemic lupus erythematosus. Patients from the public group (n = 40) were treated in a university-based specialized systemic lupus erythematosus clinic and the private group (n = 58) in a community-based rheumatology practice. Demographic and clinical features and patient-reported outcomes measures per LupusPRO instrument were determined. LupusPRO captures quality-of-life measures in 12 domains. Differences among study groups were examined using chi-square, Fisher’s exact, t-tests, and the Wilcoxon signed-rank test.Results:The mean (standard deviation) age of the study population was 44.9 (12.0) years; 94 (95.9%) were women. Patients ...

【 授权许可】

CC BY