期刊论文详细信息
BMC Cancer
Improving cancer patient care: development of a generic cancer consumer quality index questionnaire for cancer patients
Judith C Booij3  Marieke Zegers3  Pauline MPJ Evers1  Michelle Hendriks3  Diana MJ Delnoij2  Jany JDJM Rademakers3 
[1] Dutch Federation of Cancer Patient Organisations (NFK), PO box 8152, Utrecht, 3503 RD, The Netherlands
[2] Centre for Consumer Experience in Healthcare (Centrum Klantervaring Zorg, CKZ), Utrecht, The Netherlands/Tranzo (Scientific Centre for Transformation in Health and Social Care), Tilburg University, PO box 1568, Utrecht, 3500 BN, The Netherlands
[3] Department of Demand-Driven Healthcare, Netherlands Institute for Health Services Research (NIVEL), PO box 1568, Utrecht, 3500 BN, The Netherlands
关键词: Quality indicators;    Patient experience;    Healthcare quality;    Healthcare evaluation;    Focus groups;    Consumer Quality Index (CQI);   
Others  :  1079788
DOI  :  10.1186/1471-2407-13-203
 received in 2011-07-21, accepted in 2013-04-19,  发布年份 2013
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【 摘 要 】

Background

To develop a Consumer Quality Index (CQI) Cancer Care questionnaire for measuring experiences with hospital care of patients with different types of cancer.

Methods

We derived quality aspects from focus group discussions, existing questionnaires and literature. We developed an experience questionnaire and sent it to 1,498 Dutch cancer patients. Another questionnaire measuring the importance of the quality aspects was sent to 600 cancer patients. Data were psychometrically analysed.

Results

The response to the experience questionnaire was 50 percent. Psychometric analysis revealed 12 reliable scales. Patients rated rapid and adequate referral, rapid start of the treatment after diagnosis, enough information and confidence in the healthcare professionals as most important themes. Hospitals received high scores for skills and cooperation of healthcare professionals and a patient-centered approach by doctors; and low scores for psychosocial guidance and information at completion of the treatment.

Conclusions

The CQI Cancer Care questionnaire is a valuable tool for the evaluation of the quality of cancer care from the patient’s perspective. Large scale implementation is necessary to determine the discriminatory powers of the questionnaire and may enable healthcare providers to improve the quality of cancer care. Preliminary results indicate that hospitals could improve their psychosocial guidance and information provision.

【 授权许可】

   
2013 Booij et al.; licensee BioMed Central Ltd.

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【 参考文献 】
  • [1]Tishelman C, Lovgren M, Broberger E, Hamberg K, Sprangers MA: Are the most distressing concerns of patients with inoperable lung cancer adequately assessed? a mixed-methods analysis. J Clin Oncol 2010, 28:1942-1949.
  • [2]Institute of Medicine: Crossing the quality chasm: a New health system for the 21st century. Washington, DC: National Academy Press; 2001.
  • [3]Hahn SR: Patient-centered communication to assess and enhance patient adherence to glaucoma medication. Ophthalmology 2009, 116:S37-S42.
  • [4]Meterko M, Wright S, Lin H, Lowy E, Cleary PD: Mortality among patients with acute myocardial infarction: the influences of patient-centered care and evidence-based medicine. Health Serv Res 2010, 45:1188-1204.
  • [5]Swenson SL, Buell S, Zettler P, White M, Ruston DC, Lo B: Patient-centered communication: do patients really prefer it? J Gen Intern Med 2004, 19:1069-1079.
  • [6]Groene O: Patient centredness and quality improvement efforts in hospitals: rationale, measurement, implementation. Int J Qual Health Care 2011, 23:531-537.
  • [7]Lilford R, Mohammed MA, Spiegelhalter D, Thomson R: Use and misuse of process and outcome data in managing performance of acute medical care: avoiding institutional stigma. Lancet 2004, 363:1147-1154.
  • [8]Wessels H, de Graeff A, Wynia K, de Heus M, Kruitwagen CL, Teunissen SC, Voest EE: Are health care professionals able to judge cancer patients' health care preferences correctly? A cross-sectional study. BMC Health Serv Res 2010, 10:198. BioMed Central Full Text
  • [9]Cronin C: Patient-centered care: an overview of definitions and concepts. Washington, DC: Prepared for the National Health Council; 2004.
  • [10]Damman OC, Hendriks M, Sixma HJ: Towards more patient centred healthcare: a new consumer quality index instrument to assess patients' experiences with breast care. Eur J Cancer 2009, 45:1569-1577.
  • [11]Delnoij D, Rademakers J, Groenewegen PP: The dutch consumer quality index: an example of stakeholder involvement in indicator development. BMC Health Serv Res 2010, 10:88. BioMed Central Full Text
  • [12]Zuidgeest M: Measuring and improving the quality of care from the healthcare user perspective:the consumer quality index. Bergenschenhoek, Netherlands: PhD Thesis; 2011.
  • [13]Fung CH, Lim YW, Mattke S, Damberg C, Shekelle PG: Systematic review: the evidence that publishing patient care performance data improves quality of care. Ann Intern Med 2008, 148:111-123.
  • [14]Hendriks M, Spreeuwenberg P, Rademakers J, Delnoij DM: Dutch healthcare reform: did it result in performance improvement of health plans? A comparison of consumer experiences over time. BMC Health Serv Res 2009, 9:167.
  • [15]Hargraves JL, Hays RD, Cleary PD: Psychometric properties of the consumer assessment of health plans study (CAHPS) 2.0 Adult core survey. Health Serv Res 2003, 38:1509-1527.
  • [16]Sixma HJ, Kerssens JJ, Campen CV, Peters L: Quality of care from the patients' perspective: from theoretical concept to a new measuring instrument. Health Expect 1998, 1:82-95.
  • [17]Wiggers JH, Donovan KO, Redman S, Sanson-Fisher RW: Cancer patient satisfaction with care. Cancer 1990, 66:610-616.
  • [18]Skarstein J, Dahl AA, Laading J, Fossa SD: ‘Patient satisfaction’ in hospitalized cancer patients. Acta Oncol 2002, 41:639-645.
  • [19]Tamburini M, Gangeri L, Brunelli C, Boeri P, Borreani C, Bosisio M, Karmann CF, Greco M, Miccinesi G, Murru L: Cancer patients’ needs during hospitalisation: a quantitative and qualitative study. BMC Cancer 2003, 3:12. BioMed Central Full Text
  • [20]Wessels H, de Graeff A, Wynia K, Sixma HJ, de Heus M, Schipper M, Woltjer GT, Teunissen SC, Voest EE: Medical oncology patients' preferences with regard to health care: development of a patient-driven questionnaire. Ann Oncol 2009, 20:1708-1713.
  • [21]Cleary PD, Edgman-Levitan S: Health care quality. Incorporating consumer perspectives. JAMA 1997, 278:1608-1612.
  • [22]NFK quality criteria. 2010. http://www.nfk.nl/publicaties/kwaliteitscriteria/_pid/content1/_rp_content1_elementId/1_149788 webcite
  • [23]NPCF quality criteria. 2010. http://www.npcf.nl/index.php?option=com_virtuemart&page=shop.product_details&flypage=flypage.tpl&category_id=1&product_id=2&Itemid=75&vmcchk=1&Itemid=75 webcite
  • [24]EORTC IN PATSAT32. 2010. http://groups.eortc.be/qol/questionnaires_eortcinpatsat32.htm webcite
  • [25]Sixma H, Delnoij D: Measuring patient experiences in the netherlands: the case of hospital care. Eur J Pub Health 2008, 18:88.
  • [26]Dillman DA: Mail and telephone surveys: the total design method. New York: John Wiley & Sons; 1978.
  • [27]Sixma HJ, Boer De D, Delnoij D: Handboek CQ-index ontwikkeling: richtlijnen en voorschriften voor de ontwikkeling van een CQ-index meetinstrument. Utrecht: NIVEL; 2008.
  • [28]Dutch National cancer registration website: Dutch national cancer registration website. 2012. http://www.cijfersoverkanker.nl/ webcite
  • [29]WHO: Process of translation and adaptation of instruments. 2013. http://www.who.int/substance_abuse/research_tools/translation/en/ webcite
  • [30]de Boer D, Delnoij D, Rademakers J: Do patient experiences on priority aspects of health care predict their global rating of quality of care? a study in five patient groups. Health Expect 2010, 13:285-297.
  • [31]Henselmans I, Sanderman R, Smink A, Ranchor AV, De Vries J: Waiting times in breast disease clinics and psychological well-being: speedy care is better care. Ned Tijdschr Geneeskd 2010, 154:B491.
  • [32]Wilson IB, Landon BE, Hirschhorn LR, McInnes K, Ding L, Marsden PV, Cleary PD: Quality of HIV care provided by nurse practitioners, physician assistants, and physicians. Ann Intern Med 2005, 143:729-736.
  • [33]Roblin DW, Becker ER, Adams EK, Howard DH, Roberts MH: Patient satisfaction with primary care: does type of practitioner matter? Med Care 2004, 42:579-590.
  • [34]Ikkersheim DE, Koolman X: Dutch healthcare reform: did it result in better patient experiences in hospitals? A comparison of the consumer quality index over time. BMC Health Serv Res 2012, 12:76.
  • [35]de Boer D, Delnoij D, Rademakers J: The discriminative power of patient experience surveys. BMC Health Serv Res 2011, 11:332. BioMed Central Full Text
  • [36]Sitzia J, Wood N: Response rate in patient satisfaction research: an analysis of 210 published studies. Int J Qual Health Care 1998, 10:311-317.
  • [37]Sanson-Fisher R, Girgis A, Boyes A, Bonevski B, Burton L, Cook P: The unmet supportive care needs of patients with cancer. Supportive care review group. Cancer 2000, 88:226-237.
  • [38]Ross L, Petersen MA, Johnsen AT, Lundstrom LH, Groenvold M: Are different groups of cancer patients offered rehabilitation to the same extent? a report from the population-based study "the cancer Patient's world". Support Care Cancer 2012, 20:1089-1100.
  • [39]Zuidgeest M, De Boer D, Hendriks M, Rademakers J: Verschillende dataverzamelingsmethoden in CQI onderzoek: een overzicht van de respons en representativiteit van respondenten. Tijdschrift voor gezondheidswetenschappen 2008, 86(8):455-462.
  • [40]Edwards P, Roberts I, Clarke M, DiGuiseppi C, Pratap S, Wentz R, Kwan I: Increasing response rates to postal questionnaires: systematic review. BMJ 2002, 324:1183.
  • [41]Whitehead L: Methodological issues in internet-mediated research: a randomized comparison of internet versus mailed questionnaires. J Med Internet Res 2011, 13:e109.
  • [42]Ritter P, Lorig K, Laurent D, Matthews K: Internet versus mailed questionnaires: a randomized comparison. J Med Internet Res 2004, 6:e29.
  • [43]Nijman JL, Sixma H, Van TB, Keus RB, Hendriks M: The quality of radiation care: the results of focus group interviews and concept mapping to explore the patient's perspective. Radiother Oncol 2012, 102:154-160.
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