Piloting a generic cancer consumer quality index in six European countries

BMC Cancer

Research Article

Mark Patrick Roeling¹  Jana Heerink²  Anke Wind³  Wim van Harten⁴  Pietro Presti⁵  Herman Sixma⁶  Claudio Lombardo⁷ 

[1] Department of Computer Science, University of Oxford, Parks Road, OX1 3QD, Oxford, UK;Department of Health Technology and Services Research, University of Twente, P.O. Box 217, 7500 AE, Enschede, The Netherlands;Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute-Antoni van Leeuwenhoek Hospital, Plesmanlaan 121, 1066 CX, Amsterdam, The Netherlands;Department of Health Technology and Services Research, University of Twente, P.O. Box 217, 7500 AE, Enschede, The Netherlands;Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute-Antoni van Leeuwenhoek Hospital, Plesmanlaan 121, 1066 CX, Amsterdam, The Netherlands;Department of Health Technology and Services Research, University of Twente, P.O. Box 217, 7500 AE, Enschede, The Netherlands;CEO Rijnstate Hospital, Arnhem, The Netherlands;European Cancer Patient Coalition (ECPC), 40 rue de Montoyer, Brussels, Belgium;Department of Management, University of Torino, C.so Unione Sovietica 218 Bis, 10134, Turin, Italy;Netherlands Institute for Health Services Research (NIVEL), P.O. box 1568, 3500 BN, Utrecht, The Netherlands;Organisation of the European Cancer Institute’s (OECI), 11 Rue d’Egmont B-1000, Brussels, Belgium;SOS Europe Srl, Via delle Campanule, 74, 16148, Genova, Italy;

关键词: Consumer Quality Index (CQI);    Healthcare evaluation;    Healthcare quality;    Patient experience;    Patient satisfaction;   

DOI  :  10.1186/s12885-016-2752-9

 received in 2016-04-08, accepted in 2016-08-26,  发布年份 2016

来源: Springer

【 摘 要 】

BackgroundAccounting for patients’ perspective has become increasingly important. Based on the Consumer Quality Index method (founded on Consumer Assessment of Healthcare Providers and Systems) a questionnaire was recently developed for Dutch cancer patients. As a next step, this study aimed to adapt and pilot this questionnaire for international comparison of cancer patients experience and satisfaction with care in six European countries.MethodThe Consumer Quality Index was translated into the local language at the participating pilot sites using cross-translation. A minimum of 100 patients per site were surveyed through convenience sampling. Data from seven pilot sites in six countries was collected through an online and paper-based survey. Internal consistency was tested by calculating Cronbach’s alpha and validity by means of cognitive interviews. Demographic factors were compared as possible influencing factors.ResultsA total of 698 patients from six European countries filled the questionnaire. Cronbach’s alpha was good or satisfactory in 8 out of 10 categories. Patient satisfaction significantly differed between the countries. We observed no difference in patient satisfaction for age, gender, education, and tumor type, but satisfaction was significantly higher in patients with a higher level of activation.ConclusionThis European Cancer Consumer Quality Index(ECCQI) showed promising scores on internal consistency (reliability) and a good internal validity. The ECCQI is to our knowledge the first to measure and compare experiences and satisfaction of cancer patients on an international level, it may enable healthcare providers to improve the quality of cancer care.

【 授权许可】

CC BY   
© The Author(s). 2016