Cancer patients' understanding of longitudinal EORTC QLQ-C30 scores presented as bar charts

PATIENT EDUCATION AND COUNSELING

卷:99

Article

Loth, F. L.^1,2  Holzner, B.¹  Sztankay, M.^1,2  Bliem, H. R.²  Raoufi, S.²  Rumpold, G.³  Giesinger, J. M.¹ 

[1] Med Univ Innsbruck, Dept Psychiat Psychotherapy & Psychosomat, Innsbruck, Austria

[2] Leopold Franzens Univ Innsbruck, Inst Psychol, Innsbruck, Austria

[3] Med Univ Innsbruck, Dept Med Psychol, Innsbruck, Austria

关键词: Patient-reported outcomes;    Quality of life;    EORTC QLQ-C30;    Cancer;    Graphic display of data;    Patient-centred care;   

DOI  :  10.1016/j.pec.2016.08.004

来源: Elsevier

【 摘 要 】

Objective: To investigate cancer patients' understanding of graphical presentations of longitudinal EORTC QLQ-C30 scores. Methods: We conducted semi-structured interviews with brain tumour patients participating in routine patient-reported outcome (PRO) monitoring. We assessed understanding of longitudinal quality of life (QOL) profiles, presented as bar charts objectively and with self-ratings. In addition, patients' opinions on congruency of the QOL scores with their self-perceived health status were evaluated. Results: We recruited 40 brain tumour patients (57.5% female; mean age 52.7, SD 13.7). In total, 90% of patients rated the graphs as easy to understand. Accordingly, almost all questions on assessing understanding objectively were answered correctly by at least 80% of the patients. More than 95% indicated that the displayed QOL scores matched their personal perception of symptom burden and functional health in the observed period. Conclusion: Patients are able to understand their QOL results when presented graphically and are able to interpret important changes. Displayed QOL scores obtained with the EORTC QLQ-C30 are consistent with the patients' personal perception of physical and emotional functioning, pain and fatigue. Practice implications: Knowledge about patients' understanding of graphically displayed QOL results contributes to creation of optimal evidence-based feedback on the patients' present QOL and its trajectory. (C) 2016 The Author(s). Published by Elsevier Ireland Ltd.

【 授权许可】

Free