The TRIO Framework: Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making

PATIENT EDUCATION AND COUNSELING

卷:100

Review

Laidsaar-Powell, Rebekah¹  Butow, Phyllis¹  Charles, Cathy^2,3  Gafni, Amiram^2,3  Entwistle, Vikki⁴  Epstein, Ronald⁵  Juraskova, Ilona¹ 

[1] Univ Sydney, Sch Psychol, Ctr Med Psychol & Evidence Based Decis Making CeM, Sydney, NSW, Australia

[2] McMaster Univ, Dept Clin Epidemiol & Biostat, Hamilton, ON, Canada

[3] McMaster Univ, Ctr Hlth & Policy Anal CHEPA, Hamilton, ON, Canada

[4] Univ Aberdeen, Hlth Serv Res Unit, Aberdeen, Scotland

[5] Univ Rochester, Med Ctr, Dept Family Med, Rochester, NY 14642 USA

关键词: Family caregivers;    Triadic;    Medical decision-making;    Conceptual framework;   

DOI  :  10.1016/j.pec.2017.05.014

来源: Elsevier

【 摘 要 】

Objective: Family caregivers are regularly involved in cancer consultations and treatment decision making (DM). Yet there is limited conceptual description of caregiver influence/involvement in DM. To address this, an empirically-grounded conceptual framework of triadic DM (TRIO Framework) and corresponding graphical aid (TRIO Triangle) were developed. Methods: Jabareen's model for conceptual framework development informed multiple phases of development/validation, incorporation of empirical research and theory, and iterative revisions by an expert advisory group. Results: Findings coalesced into six empirically-grounded conceptual insights: i) Caregiver influence over a decision is variable amongst different groups; ii) Caregiver influence is variable within the one triad over time; iii) Caregivers are involved in various ways in the wider DM process; iv) DM is not only amongst three, but can occur among wider social networks; v) Many factors may affect the form and extent of caregiver involvement in DM; vi) Caregiver influence over, and involvement in, DM is linked to their everyday involvement in illness care/management. Conclusion: The TRIO Framework/Triangle may serve as a useful guide for future empirical, ethical and/or theoretical work. Practice implications: This Framework can deepen clinicians's and researcher's understanding of the diverse and varying scope of caregiver involvement and influence in DM. (C) 2017 Elsevier B.V. All rights reserved.

【 授权许可】

Free