The Chinese version of the Pediatric Quality of Life Inventory™ (PedsQL™) Family Impact Module: cross-cultural adaptation and psychometric evaluation

Health and Quality of Life Outcomes

Research

Lifen Feng¹  Yuantao Hao¹  Ruoqing Chen²  Zhuoyan Huang³  Yingfen Zhang⁴ 

[1] School of Public Health, Sun Yat-sen University, 510080, Guangzhou, China;School of Public Health, Sun Yat-sen University, 510080, Guangzhou, China;Department of Epidemiology, School of Public Health, Fudan University, 200032, Shanghai, China;Section of Otolaryngology Surgery, the First Affiliated Hospital of Sun Yat-sen University, 510080, Guangzhou, China;Special Center, the First Affiliated Hospital of Sun Yat-sen University, 510080, Guangzhou, China;

关键词: Kawasaki Disease;    Family Functioning;    Chinese Version;    Generic Core Scale;    Family Impact Module;   

DOI  :  10.1186/1477-7525-9-16

 received in 2010-11-12, accepted in 2011-03-23,  发布年份 2011

来源: Springer

【 摘 要 】

BackgroundA pediatric chronic health condition not only influences a child's life, but also has impacts on parent health-related quality of life (HRQOL) and family functioning. To provide care and social support to these families, a psychometrically well-developed instrument for measuring these impacts is of great importance. The present study is aimed to evaluate the psychometric properties of the Chinese version of the PedsQL™ Family Impact Module.MethodsThe cross-cultural adaptation of the PedsQL™ Family Impact Module was performed following the PedsQL™ Measurement Model Translation Methodology. The Chinese version of the PedsQL™ Family Impact Module was administered to 136 parents of children with asthma and 264 parents of children with heart disease from four Triple A hospitals. The psychometric properties such as feasibility, internal consistency reliability, item-subscale correlations and construct validity were evaluated.ResultsThe percentage of missing item responses was less than 0.1% for both asthma and heart disease sample groups. The Chinese version of the PedsQL™ Family Impact Module showed ceiling effects but had acceptable reliability (Cronbach's Alpha Coefficients were higher than 0.7 in all the subscales except "Daily Activities" in the asthma sample group). There were higher correlation coefficients between items and their hypothesized subscales than those with other subscales. The asthma sample group reported higher parent HRQOL and family functioning than the heart disease sample group. In the heart disease sample group, parents of outpatients reported higher parent HRQOL and family functioning than parents of inpatients. Confirmatory factor analysis showed that the instrument had marginally acceptable construct validity with some Goodness-of-Fit indices not reaching the standard indicating acceptable model fit.ConclusionsThe Chinese version of the PedsQL™ Family Impact Module has adequate psychometric properties and could be used to assess the impacts of pediatric asthma or pediatric heart disease on parent HRQOL and family functioning in China. This instrument should be field tested on parents of children with other chronic medical conditions in other areas. Construct validity tested by confirmatory factor analysis and test-retest reliability should be further assessed.

【 授权许可】

Unknown   
© Chen et al; licensee BioMed Central Ltd. 2011. This article is published under license to BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.