Involving patients in healthcare research is well documented but can it work in lab-based research?

Research Involvement and Engagement

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Joanne Lysaght¹  Sharon A. O’ Toole²  Deirdre O’ Raw³  Lorraine McNally³  Katayoun Bahramian³  Bridget Carr³  Ingrid Halligan Dunne³  Lea Schäfer⁴  Antoinette S. Perry⁴  Claire Hughes⁴  Adele E. Connor⁵  Jeremy C. Simpson⁶ 

[1] Cancer Immunology and Immunotherapy Group, Department of Surgery, Trinity Translational Medicine Institute, Trinity College Dublin, Dublin, Ireland;Department Obstetrics and Gynaecology, Trinity College Dublin, Dublin, Ireland;OvaCare Board and Medical Panel, Cork, Ireland;OvaCare, Cork, Ireland;School of Biology and Environmental Science, University College Dublin, Dublin, Ireland;Cancer Biology and Therapeutics Laboratory, Conway Institute of Biomolecular and Biomedical Research, University College Dublin, Dublin, Ireland;School of Biology and Environmental Science, University College Dublin, Dublin, Ireland;Cancer Biology and Therapeutics Laboratory, Conway Institute of Biomolecular and Biomedical Research, University College Dublin, Dublin, Ireland;Cell Screening Laboratory, University College Dublin, Dublin, Ireland;School of Biology and Environmental Science, University College Dublin, Dublin, Ireland;Cell Screening Laboratory, University College Dublin, Dublin, Ireland;Conway Institute of Biomolecular and Biomedical Research, University College Dublin, Dublin, Ireland;

关键词: PPI;    Ovarian cancer;    Precision medicine;    Translational research;   

DOI  :  10.1186/s40900-023-00500-y

 received in 2023-06-13, accepted in 2023-09-25,  发布年份 2023

来源: Springer

【 摘 要 】

Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and lab-based research. Whilst case studies and practical guides have been developed and are well documented for PPI in healthcare research, there is very little guidance available for PPI in lab-based research. In this piece we discuss our experience of how we have successfully involved patients in our translational cancer research, which is focused on developing personalised treatment for high-grade serous ovarian cancer. We discuss the benefits it has made to both our research and to us as researchers. The patients involved write about their experience, what they enjoyed, and the benefits they felt. Although PPI is quite topical and is being widely discussed, there is hesitancy among researchers, especially those in lab-based research about getting started because of a lack of practical guidance about how to implement it. Here, we have shared our experience, hopefully providing a practical example of how PPI can be incorporated into a lab-based research project.

【 授权许可】

CC BY   
© BioMed Central Ltd., part of Springer Nature 2023