Post-discharge stroke patients’ information needs as input to proposing patient-centred eHealth services

BMC Medical Informatics and Decision Making

Research Article

Nadia Davoody¹  Maria Hägglund¹  Sabine Koch¹  Ingvar Krakau² 

[1] Department of Learning, Informatics, Management and Ethics, Health Informatics Centre, Karolinska Institutet, Tomtebodavägen 18 A, 171 77, Stockholm, Sweden;Department of Medicine, Karolinska Institutet, Solnavägen 1, 171 77, Stockholm, Sweden;

关键词: Information and communication technology;    Health information system;    eHealth services;    Stroke;    Rehabilitation;    Patient experience;    Patient journey;   

DOI  :  10.1186/s12911-016-0307-2

 received in 2015-12-16, accepted in 2016-06-01,  发布年份 2016

来源: Springer

【 摘 要 】

BackgroundDespite the potential of eHealth services to revolutionize the way healthcare and prevention is provided many applications developed for patients fail to deliver their promise. Therefore, the aim of this study is to use patient journey mapping to explore post-discharge stroke patients’ information needs to propose eHealth services that meet their needs throughout their care and rehabilitation processes.MethodsThree focus groups with younger (<65 years) and older (> = 65 years) stroke patients were performed. Content analysis was used to analyse the data. Stroke patients’ information needs was explored using patient journey model.ResultsFour main events (discharge from hospital, discharge from rehab clinic, coming home, and clinical encounters) and two phases (at rehab clinic, at home) have been identified in patients’ post-discharge journey. The main categories identified in this study indicate that patients not only need to have access to health related information about their care and rehabilitation processes but also practical guidance through healthcare and community services. Patients also have different information needs at different events and during different phases. Potential supportive eHealth services were suggested by the researchers considering different parts of the patients’ journeys.ConclusionsPatient journey models and qualitative analysis of patients’ information needs are powerful tools that can be used to improve healthcare from a patient perspective. As patients’ understanding of their illness changes over time, their need of more flexible support throughout the care and rehabilitation processes increases. To design appropriate eHealth services that meet patients’ information needs, it is imperative to understand the current care and rehabilitation processes and identify patients’ information needs throughout their journey.

【 授权许可】

CC BY   
© The Author(s). 2016