A qualitative study of online mental health information seeking behaviour by those with psychosis

BMC Psychiatry

Research Article

Kate Fullarton¹  Nicola Morant¹  Puffin O’Hanlon¹  Golnar Aref-Adib²  Sonia Johnson²  Andrew Sommerlad²  David Osborn² 

[1] Division of Psychiatry, University College London, 149 Tottenham Court Road, W1T 7NF, London, UK;Division of Psychiatry, University College London, 149 Tottenham Court Road, W1T 7NF, London, UK;Camden and Islington NHS Foundation Trust, 4th Floor, East Wing, St Pancras Hospital, 4 Saint Pancras Way, NW1 0PE, London, UK;

关键词: Psychosis;    Severe Mental Illness;    Online;    Internet;    Health Information;    Digital Technology;   

DOI  :  10.1186/s12888-016-0952-0

 received in 2015-05-20, accepted in 2016-06-20,  发布年份 2016

来源: Springer

【 摘 要 】

BackgroundThe Internet and mobile technology are changing the way people learn about and manage their illnesses. Little is known about online mental health information seeking behaviour by people with psychosis. This paper explores the nature, extent and consequences of online mental health information seeking behaviour by people with psychosis and investigates the acceptability of a mobile mental health application (app).MethodsSemi-structured interviews were carried out with people with psychosis (n = 22). Participants were purposively recruited through secondary care settings in London. The main topics discussed were participants’ current and historical use of online mental health information and technology. Interviews were audio-recorded, transcribed and analysed by a team of researchers using thematic analysis.ResultsMental health related Internet use was widespread. Eighteen people described searching the Internet to help them make sense of their psychotic experiences, and to read more information about their diagnosis, their prescribed psychiatric medication and its side-effects. Whilst some participants sought ‘expert’ online information from mental health clinicians and research journals, others described actively seeking first person perspectives. Eight participants used this information collaboratively with clinicians and spoke of the empowerment and independence the Internet offered them. However nine participants did not discuss their use of online mental health information with their clinicians for a number of reasons, including fear of undermining their clinician’s authority. For some of these people concerns over what they had read led them to discontinue their antipsychotic medication without discussion with their mental health team.ConclusionsPeople with psychosis use the Internet to acquire mental health related information. This can be a helpful source of supplementary information particularly for those who use it collaboratively with clinicians. When this information is not shared with their mental health team, it can affect patients’ health care decisions. A partnership approach to online health-information seeking is needed, with mental health clinicians encouraging patients to discuss information they have found online as part of a shared decision-making process. Our research suggests that those with psychosis have active digital lives and that the introduction of a mental health app into services would potentially be well received.

【 授权许可】

CC BY   
© Aref-Adib et al. 2016