Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue

Journal of Patient-Reported Outcomes

Short Report

Roy I. Lalisang¹  Jacqueline M. Tromp²  Monique E. M. M. Bos³  J. Martijn Kerst⁴  Winette T. A. van der Graaf⁵  Suzanne E. J. Kaal⁶  Janine Nuver⁷  Rhodé Bijlsma⁸  Mathilde C. M. Kouwenhoven⁹  Silvie H. M. Janssen^1,10  Olga Husson^1,11  Carla Vlooswijk^1,12  Lonneke V. van de Poll-Franse^1,13 

[1] Department of Internal Medicine, Division of Medical Oncology, GROW-School of Oncology and Reproduction, Maastricht UMC+ Comprehensive Cancer Center, 6229 HX, Maastricht, The Netherlands;Department of Medical Oncology, Amsterdam University Medical Centers, 1105 AZ, Amsterdam, The Netherlands;Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Center, 3015 GD, Rotterdam, The Netherlands;Department of Medical Oncology, Netherlands Cancer Institute-Antoni Van Leeuwenhoek, 1066 CX, Amsterdam, The Netherlands;Department of Medical Oncology, Netherlands Cancer Institute-Antoni Van Leeuwenhoek, 1066 CX, Amsterdam, The Netherlands;Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Center, 3015 GD, Rotterdam, The Netherlands;Department of Medical Oncology, Radboud University Medical Center, 6525 GA, Nijmegen, The Netherlands;Department of Medical Oncology, University Medical Center Groningen, 9713 GZ, Groningen, The Netherlands;Department of Medical Oncology, University Medical Center Utrecht, 3584 CX, Utrecht, The Netherlands;Department of Neurology, Amsterdam UMC, Amsterdam University Medical Centers, Location VUmc, 1081 HV, Amsterdam, The Netherlands;Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, 1066 CX, Amsterdam, The Netherlands;Department of Medical Oncology, Netherlands Cancer Institute-Antoni Van Leeuwenhoek, 1066 CX, Amsterdam, The Netherlands;Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, 1066 CX, Amsterdam, The Netherlands;Department of Medical Oncology, Netherlands Cancer Institute-Antoni Van Leeuwenhoek, 1066 CX, Amsterdam, The Netherlands;Department of Surgical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Center, 3015 GD, Rotterdam, The Netherlands;Research and Development, Netherlands Comprehensive Cancer Organisation, 3511 DT, Utrecht, The Netherlands;Research and Development, Netherlands Comprehensive Cancer Organisation, 3511 DT, Utrecht, The Netherlands;Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, 1066 CX, Amsterdam, The Netherlands;Department of Medical and Clinical Psychology, Tilburg University, 5037 AB, Tilburg, The Netherlands;

关键词: Adolescents and young adults;    COVID-19;    Health-related quality of life;    Social functioning;    Survivorship;    Cancer;   

DOI  :  10.1186/s41687-023-00629-0

 received in 2022-12-26, accepted in 2023-08-25,  发布年份 2023

来源: Springer

【 摘 要 】

The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was worse compared to the normative population before and during the COVID-19 pandemic, the scores of AYACS improved over time in contrast to the normative population. Presumably, AYACS are used to adjusting their lives to stressful life events. Furthermore, the lockdown may have been beneficial for AYACS who face difficulties fully participating in society due to the impact of cancer. AYACS who encounter HRQoL issues could benefit from support interventions to empower them and build resilience.

【 授权许可】

CC BY   
© International Society for Quality of Life Research (ISOQOL) 2023

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