Inclusive approaches to involvement of community groups in health research: the co-produced CHICO guidance

Research Involvement and Engagement

Research

Zehra Haq¹  Gloria Watson²  Vikki Wylde³  Catherine Jameson³  Samira Musse⁴  Zahra Kosar⁴ 

[1] Dhek Bhal, Wellspring Settlement, Barton Hill, Bristol, UK;Malcolm X Elders, Malcolm X Community Centre, St Pauls, Bristol, UK;Musculoskeletal Research Unit, Bristol Medical School, Southmead Hospital, University of Bristol, Learning and Research Building, BS10 5NB, Bristol, UK;NIHR Bristol Biomedical Research Centre, University Hospitals Bristol and Weston NHS Foundation Trust and University of Bristol, Bristol, UK;My Friday Coffee Morning – Barton Hill, University of Bristol micro campus, Barton Hill, Bristol, UK;

关键词: Ethnic groups;    Community groups;    Diversity;    Involvement;    Health research;    Guidance;   

DOI  :  10.1186/s40900-023-00492-9

 received in 2023-06-07, accepted in 2023-08-26,  发布年份 2023

来源: Springer

【 摘 要 】

BackgroundRacially marginalised groups are underserved in healthcare and underrepresented in health research. Patient and public involvement and engagement (PPIE) is established as the method to ensure equity in health research. However, methods traditionally employed in PPIE can lead to the exclusion of some communities and exacerbation of existing inequalities, highlighting the need to develop inclusive processes for more inclusive community involvement in health research. We aimed to produce guidance to promote good practice for inclusive involvement of racially marginalised community groups in health research via public and community involvement and engagement.MethodsThe CHecklist for Inclusive COmmunity involvement in health research (CHICO) was co-produced by researchers and three Bristol-based community organisations: Dhek Bhal, My Friday Coffee Morning—Barton Hill, and Malcolm X Elders. After initial conversations and link building with community leaders to develop relationships, researchers attended at least three meetings with each community group to discuss preferred approaches to involvement. Each community group had a different format, and discussions were open and tailored to fit the groups preferences. The meetings were held in the community groups’ usual meeting venue. Notes from meetings were reviewed by researchers to identify key themes, which were used to inform the creation of a draft illustration which was then taken back to the community groups for refinement and used to inform the development of written guidance and the final illustration.ResultsChecklist items were structured into three stages: (1) building relationships, (2) reciprocal relationships and (3) practicalities. Stage 1 highlights the importance of building trust with the community group over time through regular visits to community venues and talking to people informally to understand the history of the group, their preferences and needs, and topics that are likely to be of interest to them. Stage 2 focusses on maintaining a reciprocal relationship and understanding how to best to give back to the community. Stage 3 provides guidance on the practicalities of designing and running inclusive community-based involvement activities, including consideration of the venue, format, communication-style, language requirements, social activities, and provision of food.ConclusionsOur co-produced checklist can guide researchers in how to involve people from different ethnicities in health research that is relevant to their community.

【 授权许可】

CC BY   
© BioMed Central Ltd., part of Springer Nature 2023

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