Core components of a rehabilitation program in pediatric cardiac disease

Frontiers in Pediatrics

Pediatrics

Lainie Holman¹  Naomi Gauthier²  Rachel Santiago³  Lisa Schonberger³  Kelsey White³  Jolie J. Britt⁴  Tam Dan N. Pham⁴  Kristin Clarkson⁵  Ana Ubeda Tikkanen⁶  Joshua Vova⁷  Daryaneh Badaly⁸  Maddie Chrisman⁹ 

[1] Department Pediatric Physical Medicine and Rehabilitation, Cleveland Clinic, Cleveland, OH, United States;Department of Cardiology, Boston Children’s Hospital, Boston, MA, United States;Department of Otolaryngology and Communication Enhancement, Boston Children’s Hospital, Boston, MA, United States;Department of Pediatric Cardiology, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, United States;Department of Pediatric Physical Medicine and Rehabilitation, UPMC Children's Hospital of Pittsburgh, United States;Department of Pediatric Rehabilitation, Spaulding Rehabilitation Hospital, Boston, MA, United States;Department of Cardiac Surgery, Boston Children’s Hospital, Boston, MA, United States;Department of Orthopedic Surgery, Boston Children’s Hospital, Boston, MA, United States;Department of Physical Medicine and Rehabilitation, Harvard Medical School, Boston, MA, United States;Department of Physiatry, Children’s Healthcare of Atlanta, Atlanta, GA, United States;Learning and Development Center, Child Mind Institute, New York, NY, United States;Wolff Center, University of Pittsburgh Medical Center, Pittsburgh, PA, United States;

关键词: children;    heart;    rehabilitation;    function;    cardiac;   

DOI  :  10.3389/fped.2023.1104794

 received in 2022-11-22, accepted in 2023-04-17,  发布年份 2023

来源: Frontiers

【 摘 要 】

There is increasing effort in both the inpatient and outpatient setting to improve care, function, and quality of life for children with congenital heart disease, and to decrease complications. As the mortality rates of surgical procedures for congenital heart disease decrease, improvement in perioperative morbidity and quality of life have become key metrics of quality of care. Quality of life and function in patients with congenital heart disease can be affected by multiple factors: the underlying heart condition, cardiac surgery, complications, and medical treatment. Some of the functional areas affected are motor abilities, exercise capacity, feeding, speech, cognition, and psychosocial adjustment. Rehabilitation interventions aim to enhance and restore functional ability and quality of life for those with physical impairments or disabilities. Interventions such as exercise training have been extensively evaluated in adults with acquired heart disease, and rehabilitation interventions for pediatric patients with congenital heart disease have similar potential to improve perioperative morbidity and quality of life. However, literature regarding the pediatric population is limited. We have gathered a multidisciplinary team of experts from major institutions to create evidence- and practice-based guidelines for pediatric cardiac rehabilitation programs in both inpatient and outpatient settings. To improve the quality of life of pediatric patients with congenital heart disease, we propose the use of individualized multidisciplinary rehabilitation programs that include: medical management; neuropsychology; nursing care; rehabilitation equipment; physical, occupational, speech, and feeding therapies; and exercise training.

【 授权许可】

Unknown   
© 2023 Ubeda Tikkanen, Vova, Holman, Chrisman, Clarkson, Santiago, Schonberger, White, Badaly, Gauthier, Pham, Britt, Crouter, Giangregorio, Nathan and Akamagwuna.