Further development in measuring communicative participation: identifying items to extend the applicability of the communicative participation item bank

Journal of Patient-Reported Outcomes

Review

Caroline B. Terwee¹  Anna Volkmer²  Johanna M.A. Visser-Meily³  Lizet van Ewijk⁴  Ellen Gerrits⁵  Nicole ter Wal⁵ 

[1] Department of Epidemiology and Data Science, Amsterdam Public Health research institute, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands;Department of Language and Cognition, University College London, London, UK;Department of Rehabilitation, Physical Therapy Science & Sports, UMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands;Centre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Centre, De Hoogstraat Rehabilitation, University Medical Centre Utrecht and Utrecht University, Utrecht, The Netherlands;Research Centre Healthy and Sustainable Living, HU University of Applied Sciences Utrecht, P.O. box 12011, 3501 AA, Utrecht, The Netherlands;Research Centre Healthy and Sustainable Living, HU University of Applied Sciences Utrecht, P.O. box 12011, 3501 AA, Utrecht, The Netherlands;Department of Languages, Literature and Communication, Utrecht Institute of Linguistics OTS, Utrecht University, Utrecht, The Netherlands;

关键词: Communicative participation;    Patient reported outcome measure;    Language problems;    Voice problems;    Hearing problems;    Speech problems;   

DOI  :  10.1186/s41687-023-00586-8

 received in 2022-07-18, accepted in 2023-04-24,  发布年份 2023

来源: Springer

【 摘 要 】

BackgroundThe ability to communicate is a prerequisite for participation in today’s society. To measure participation in adults with communication disorders, the Communicative Participation Item Bank (CPIB) was developed in 2006. Since then, several new PROMs have been developed to measure communication and the impact of communication disorders on participation. Moreover, the CPIB items do not all appear to be relevant to certain populations with communication problems and context of communicative participation is changing rapidly, given the increased use of digital communication forms. The purpose of this study was to identify new PROMs developed since 2006 that aim to measure (aspects of) communication, in order to select items that are suitable for expanding the Communicative Participation Item Bank to make the item bank more widely applicable (e.g., to the hearing-impaired population) and tailored to the current societal context.MethodsMedline and Embase were used to search for PROMs that aim to measure (aspects of) communication. Each new PROM as well as the CPIB, was evaluated to determine to what extent it contains items that measure communicative participation and to what extent these items capture all communicative participation domains by linking each item to the ICF Activities and Participation domains.ResultsThis study identified 31 new PROMs, containing 391 items that were labelled as measuring communicative participation. The majority of the 391 items measure aspects of ICF Activities and Participation domain ‘communication’, followed by the domain ‘interpersonal interactions and relationships’. The other ICF Activity and Participation domains were less often addressed. Analysis of the CPIB showed that items do not cover all domains of participation as defined in the ICF, such as the ‘major life areas’ domain.ConclusionsWe found a potential pool of 391 items measuring communicative participation that could be considered for extending the CPIB. We found items in domains that are already present in the CPIB, but also items that relate to new domains, such as an item on talking with customers or clients for the ‘major life areas’ domain. Inclusion of new items in other domains would benefit the comprehensiveness of the item bank.

【 授权许可】

CC BY   
© The Author(s) 2023

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