Perceptions of Received Information, Social Support, and Coping in Patients with Pulmonary Arterial Hypertension or Chronic Thromboembolic Pulmonary Hypertension

Clinical Medicine Insights: Circulatory, Respiratory and Pulmonary Medicine

Original Research

Goran Radegran¹  Trygve Sjöberg²  Bodil Ivarsson³  Björn Ekmehag⁴  Roger Hesselstrand⁵ 

[1] Department of Cardiology, Clinical Sciences, Lund University, Lund, Sweden.;The Section for Heart Failure and Valvular Disease, Skane University Hospital, Lund, Sweden.;Department of Cardiothoracic Surgery, Lund University, Lund, Sweden.;The clinic for Cardiothoracic Surgery, Skane University Hospital, Lund, Sweden.;Department of Cardiothoracic Surgery, Lund University, Lund, Sweden.;The clinic for Cardiothoracic Surgery, Skane University Hospital, Lund, Sweden.;Medical Services, University Healthcare, Skane, Sweden;Department of Public Health and Caring Science, Uppsala University, and Uppsala University Hospital, Uppsala, Sweden.;Department of Rheumatology, Lund University, Lund, Sweden.;The clinic for Rheumatology, Skane University Hospital, Lund, Sweden.;

关键词: communication;    chronic disease;    mastery;    professional-patient relations;    patient preference;    social support;   

DOI  :  10.4137/CCRPM.S18586

 received in 2014-07-13, accepted in 2014-08-25,  发布年份 2014

来源: Sage Journals

【 摘 要 】

Patients with a life-limiting diagnosis of pulmonary arterial hypertension (PAH) or chronic thromboembolic pulmonary hypertension (CTEPH) need disease-specific information, ability to cope, and functioning social networks. This cohort study investigated the experiences of PAH and CTEPH patients who received information about their diagnosis, treatment, and management, in addition to coping and social support. Sixty-eight adult patients (mean ∓ SD, age 67 ∓ 14; 66% women) were included. A total of 54% of the patients wanted more information. Patients received information mostly in areas concerning medical test procedures, the diagnosis, disease severity, possible disease causes, and how to manage their disease. Coping ability was significantly better in patients who were satisfied with the received information (P= 0.0045). The information given to PAH or CTEPH patients and their communication with healthcare professionals can be greatly improved. Gaps in information and misunderstandings can be avoided by working in cooperation with the patients, their relatives, and within the PAH team.

【 授权许可】

CC BY-NC   
© 2014 SAGE Publications.

【 图 表 】

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