Neurocognitive disorders: what are the prioritized caregiver needs? A consensus obtained by the Delphi method

BMC Health Services Research

Floriane Delphin-Combe¹  V. Dauphinot¹  Lucie Winterstein¹  Michel Kossovsky²  Teddy Novais³  Christelle Mouchoux⁴  Pierre Krolak-Salmon⁵ 

[1] Clinical and Research Memory Centre of Lyon (CMRR), Charpennes Hospital, Hospices Civils de Lyon;Department of Internal medicine, Rehabilitation and Geriatrics, University Hospitals of Geneva and University of Geneva;EA-7425 HESPER, Health Services and Performance Research, University Lyon;Pharmaceutical Unit, Charpennes Hospital, Hospices Civils de Lyon;University Lyon 1;

关键词: Caregivers;    Neurocognitive disorders;    Delphi method;    Needs assessment;    Training/education;   

DOI  :  10.1186/s12913-018-3826-y

来源: DOAJ

【 摘 要 】

Abstract Background The symptoms related to neurocognitive disorders (NCD) may lead to caregiver burden increase. Involving caregivers in research may be an effective way of improving the practicalities and relevance of interventions. The aim of this study was to gather opinion and gain consensus on the caregivers ‘priorities, using a Delphi method and including aspects of needs in pharmaceutical dimension. Methods Observational study using a modified Delphi method. This study was conducted in the Clinical and Research Memory Center of the University Hospital of Lyon (France), between September 2015 and January 2016. The expert panel was composed of 68 informal caregivers of people with subjective cognitive decline or NCD living at home. Results Caregivers assigned a very high importance to the dimension “information needs about their relative’s disease”, i.e. information on the disease, the treatment and the research; and to “coping skills”, i.e. skills related to emotional support, communication, relationship evolution with the relative and skills to cope with behavioural crisis, behavioural and cognitive disorders. The aspect “coping with behavioural disorders” received a high selection rate (83%). Conclusions The main needs selected can be used to design relevant interventions and give guidance to policy to support caregivers. To meet caregiver’s needs, interventions should focus on information about disease and treatment and psychoeducational interventions.

【 授权许可】

Unknown