How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies

BMC Geriatrics

Research Article

P. Krolak-Salmon¹  C. Mouchoux²  V. Dauphinot³  T. Novais⁴ 

[1] Clinical Research Centre (CRC) - VCF (Aging – Brain - Frailty), Charpennes Hospital, University Hospital of Lyon, F-69100, Villeurbanne, France;Clinical and Research Memory Centre of Lyon (CMRR), Charpennes Hospital, University Hospital of Lyon, F-69100, Villeurbanne, France;University Lyon 1, F-69000, Lyon, France;INSERM U1028, CNRS UMR5292, Lyon Neuroscience Research Center, Brain Dynamics and Cognition Team, University Lyon 1, F-69000, Lyon, France;Clinical Research Centre (CRC) - VCF (Aging – Brain - Frailty), Charpennes Hospital, University Hospital of Lyon, F-69100, Villeurbanne, France;Pharmaceutical Unit, Charpennes Hospital, University Hospital of Lyon, F-69100, Villeurbanne, France;University Lyon 1, F-69000, Lyon, France;INSERM U1028, CNRS UMR5292, Lyon Neuroscience Research Center, Brain Dynamics and Cognition Team, University Lyon 1, F-69000, Lyon, France;Clinical and Research Memory Centre of Lyon (CMRR), Charpennes Hospital, University Hospital of Lyon, F-69100, Villeurbanne, France;EA-7425 HESPER, Health Services and Performance Research, University Lyon, F-69003, Lyon, France;Clinical Research Centre (CRC) - VCF (Aging – Brain - Frailty), Charpennes Hospital, University Hospital of Lyon, F-69100, Villeurbanne, France;Pharmaceutical Unit, Charpennes Hospital, University Hospital of Lyon, F-69100, Villeurbanne, France;

关键词: Caregivers;    Needs assessment;    Mild cognitive impairment;    Dementia;    Alzheimer’s disease and Related Diseases;    Systematic review;    Quantitative studies;    Qualitative studies;   

DOI  :  10.1186/s12877-017-0481-9

 received in 2016-10-12, accepted in 2017-04-06,  发布年份 2017

来源: Springer

【 摘 要 】

BackgroundThis study aims to review the methodologies used to identify the needs, the existing needs assessment instruments and the main topics of needs explored among caregivers of patients with mild cognitive impairment to dementia.MethodsMEDLINE, PsycINFO, The Cochrane Library and Web of science were searched from January 1980 to January 2017. Research studies in English or French were eligible for inclusion if they fulfilled the following criteria: quantitative, qualitative and mixed method studies that used instrument, focus group or semi-structured interviews to assess the informal caregiver’s needs in terms of information, coping skills, support and service.ResultsSeventy studies (n = 39 quantitative studies, n = 25 qualitative studies and n = 6 mixed method studies) met the inclusion criteria and were included. Thirty-six quantitative instruments were identified but only one has been validated for the needs assessment of dementia caregivers: the Carer’s Needs Assessment for Dementia (CNA-D). The main areas of needs explored in these instruments were: information, psychosocial, social, psychoeducational and other needs.ConclusionsNo instrument has been developed and validated to assess the needs of informal caregivers of patients with cognitive impairment, whatever the stage and the etiology of the disease. As the perceived needs of caregivers may evolve with the progression of the disease and the dementia transition, their needs should be regularly assessed.

【 授权许可】

CC BY   
© The Author(s). 2017