Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic care

Arquivos de Neuro-Psiquiatria

关键词: muscular dystrophy, Duchenne;    consensus;    physical therapy modalities;    exercise;    rehabilitation;    noninvasive ventilation;    cognition;    quality of life;    orthotic devices;    muscle stretching exercises;    tracheostomy;    vital capacity;    respiratory function tests;    cardiomyopathies;    heart failure;    nutrition disorders;    nutritional support;    intellectual disability;   

DOI  :  10.1590/0004-282x20180062

来源: DOAJ

【 摘 要 】

ABSTRACT Significant advances in the understanding and management of Duchenne muscular dystrophy (DMD) have occurred since the publication of international guidelines for DMD care in 2010. Our objective was to provide an evidence-based national consensus statement for multidisciplinary care of DMD in Brazil. A combination of the Delphi technique with a systematic review of studies from 2010 to 2016 was employed to classify evidence levels and grade of recommendations for the guideline. Our recommendations were divided in two parts. Guideline methodology and overall disease concept descriptions are found in Part 1. Here we present Part 2, where we provide the results and recommendations on rehabilitation and systemic care for DMD.

【 授权许可】

Unknown