Patients, Public and Service Users are Experts by Experience: An Overview from Ophthalmology Research in Canada, UK and Beyond

Ophthalmology and Therapy

Andrew M. Skilton¹  Helen Dimaras²  Leslie G. Low² 

[1] NIHR Biomedical Research Center, Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology;The Canadian Retinoblastoma Research Advisory Board;

关键词: Bilateral retinoblastoma;    Canada;    Engagement;    Expert by experience;    Involvement;    Lived experience;   

DOI  :  10.1007/s40123-020-00237-x

来源: DOAJ

【 摘 要 】

Plain Language Summary Through living with conditions and/or engaging with health and social care services patients, public and service users become experts by experience. In Canada and the UK, the active involvement of experts by experience in ophthalmology research (as well as in other specialties) positively benefits all stages of the research cycle; improves the experience and outcomes for patients taking part in research; drives better engagement between researchers, the public and other key stakeholders; and benefits these expert’s own sense of wellbeing and achievement. At the moment, the extent to which experts by experience are active in ophthalmology research around the world is unclear, but likely to be minimal. To enable more research to benefit from the contribution of experts by experience, global efforts to improve the continuity and quality of reporting and evidence of impact are needed.

【 授权许可】

Unknown