Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol

Contemporary Clinical Trials Communications

卷:22

Kelly Davis¹  Miriam Lense²  Mary S. Dietrich³  Mary Jo Gilmer⁴  Dana Kim⁴  Rylie Webber⁵  Tracy Hills⁵  Terrah Foster Akard⁵ 

[1] Corresponding author.;

[2] Monroe Carrell Jr. Children's Hospital at Vanderbilt, Nashville, TN, USA;

[3] Vanderbilt University Medical Center, Nashville, TN, USA;

[4] Vanderbilt University, Nashville, TN, USA;

关键词: Pediatrics;    Songwriting;    Music therapy;    Palliative care;    Palliative medicine;    Hospice and palliative care nursing;   

DOI  :  

来源: DOAJ

【 摘 要 】

Investigations evaluating the effectiveness of music-based interventions as a complementary approach to symptom management and health promotion for cognitively-impaired children with life-limiting conditions and their families are needed to minimize the physical and psychological burdens on individuals and their caregivers. Songwriting is one music-based strategy for a remote family-centered complementary approach to improve outcomes for cognitively-impaired children with life-limiting conditions, their parents, and families. The overall purpose of this study is to test the feasibility and preliminary efficacy of a songwriting intervention for cognitively-impaired children (ages 5–17 years) who are receiving palliative or complex care and their parents. Specific aims are to: (1) determine the feasibility of songwriting for cognitively-impaired children with life-limiting conditions and their parents, and (2) examine preliminary efficacy of songwriting for child psychological distress and physical symptoms, parent psychological distress, and family environment. The protocol for this 1-group pre-and post-intervention clinical trial (N = 25) is described.

【 授权许可】

Unknown