Pregnancy and parenting experiences of women with twin-to-twin transfusion syndrome: a qualitative study

BMC Pregnancy and Childbirth

Shaowei Yin¹  Lijie Ren²  Chunling Xia³  Yan Yang³  Cancan Song³  Nan Wang³ 

[1] Gynecology and Obstetrics Department, Shengjing Hospital of China Medical University, 36 Sanhao Road, Heping District, CO 110004, Shenyang City, Liaoning Province, China;Gynecology and Obstetrics Department, Shengjing Hospital of China Medical University, 36 Sanhao Road, Heping District, CO 110004, Shenyang City, Liaoning Province, China;Nursing Department, Shengjing Hospital of China Medical University, 36 Sanhao Road, Heping District, CO 110004, Shenyang City, Liaoning Province, China;Nursing Department, Shengjing Hospital of China Medical University, 36 Sanhao Road, Heping District, CO 110004, Shenyang City, Liaoning Province, China;

关键词: Twin-to-twin transfusion syndrome;    Pregnancy and parenting experience;    Mental state;    Qualitative research;   

DOI  :  10.1186/s12884-021-04057-0

来源: Springer

【 摘 要 】

BackgroundQualitative research can reflect the actual thoughts and experience of research subjects and can be used to explore the experiences of women presenting with twin-to-twin transfusion syndrome (TTTS) to facilitate the provision of targeted psychological support.MethodsA semi-structured interview method was used to assess the pregnancy and parenting experiences of women with TTTS. Colaizzi method was used for data analysis.ResultsEighteen women participated in the study. We found that women with TTTS during pregnancy experienced persistent worry about their children’s health from the disease diagnosis to the subsequent parenting processes, even in case of minor changes in their children’s health. The lack of an efficient referral process and health information increased their uncertainty about their children’s health.ConclusionIn addition to the children’s health, other difficulties encountered during pregnancy and parenting may aggravate the pressure. Clinicians in the first-visit hospital and foetal medicine centre should improve the referral process and establish a follow-up system to provide women with health information and psychological support.

【 授权许可】

CC BY