Forming a Parent And Clinician Team (PACT) in a cohort of healthy children

Research Involvement and Engagement

Catherine S. Birken¹  Jonathon L. Maguire²  Shelley M. Vanderhout²  Maria Zaccaria Cho³ 

[1] Division of Paediatric Medicine and the Paediatric Outcomes Research Team, The Hospital for Sick Children, 555 University Avenue, M5G 1X8, Toronto, Ontario, Canada;Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research & Learning, 686 Bay Street, 11th floor, M5G 0A4, Toronto, Ontario, Canada;Li Ka Shing Knowledge Institute of St. Michael’s Hospital, Unity Health Toronto, 30 Bond Street, 15CC-014, 209 Victoria St, M5B 1T8, Toronto, ON, Canada;Patient Partner, Toronto, Canada;

关键词: Patient engagement;    Partnership;    Children;    Parents;   

DOI  :  10.1186/s40900-021-00293-y

来源: Springer

【 摘 要 】

BackgroundEngaging parents in child health research can facilitate choosing relevant research questions, recruiting participants who reflect the diversity of large communities, and disseminating study results to communities in accessible ways.Main bodyPrimary care well-child visit systems present a foundation for trusting relationships between families and clinicians, lending itself well to a system where health research is embedded into the delivery of health care. We provide an example of a practice-based research network called TARGet Kids!, which is a longitudinal cohort study of children from birth to adolescence. Researchers and clinicians have partnered with parents of children participating in TARGet Kids! to ensure child health research is centred on family values and preferences. A Parent And Clinician Team (PACT) was formed to set research priorities, co-design research protocols, troubleshoot issues, and communicate research to knowledge users.ConclusionThis partnership will facilitate child health research which is feasible, relevant and inclusive for improving children’s health care and public health policy.

【 授权许可】

CC BY