Recommendations for starting a grown up congenital heart disease (GUCH) unit

Revista Brasileira de Cirurgia Cardiovascular

Fernando Tadeu Vasconcelos Amaral¹  Paulo Henrique Manso¹  André Schmidt¹  Ricardo Nilson Sgarbieri¹  Walter Villela De Andrade Vicente¹  Clovis Carbone Junior¹  Jane Somerville¹ 

关键词: Congenital Abnormalities;    Heart;    Adult;    Cardiopatias Congênitas;    Adulto;    Unidades Hospitalares;   

DOI  :  10.5935/1678-9741.20150037

来源: SciELO

【 摘 要 】

AbstractDuring the last decades, advances in diagnosis and treatment of congenital heart disease have allowed many individuals to reach adulthood. Due mainly to the great diagnostic diversity and to the co-morbidities usually present in this age group, these patients demand assistance in a multidisciplinary facility if an adequate attention is aimed. In this paper we reviewed, based in the international literature and also on the authors’ experience, the structural conditions that should be available for these patients. We highlighted aspects like the facility characteristics, the criteria usually adopted for patient transfer from the paediatric setting, the composition of the medical and para- medical staff taking into account the specific problems, and also the model of outpatient and in-hospital assistance. We also emphasized the importance of patient data storage, the fundamental necessity of institutional support and also the compromise to offer professional training. The crucial relevance of clinical research is also approached, particularly the development of multicenter studies as an appropriate methodology for this heterogeneous patient population.

【 授权许可】

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