Twin–Twin Transfusion Syndrome and Maternal Symptomatology—An Exploratory Analysis of Patient Experiences When Reporting Complaints:

Journal of Patient Experience

LaurenNicholas¹ 

关键词: patient experience;    maternal symptomatology;    monochorionic–diamniotic;    MCDA;    reporting;    twin–twin transfusion syndrome;    TTTS;   

DOI  :  10.1177/2374373517736760

学科分类：医学（综合）

来源: Sage Journals

【 摘 要 】

Objective:The aim of this study was to assess patient experiences when reporting symptoms of twin–twin transfusion syndrome (TTTS) to their health-care providers.Methodology:The study utilized an online, retrospective survey of women, over the age of 18, who were living in the United States at the time of their pregnancy and had completed a TTTS pregnancy.Results:Three hundred sixty-seven cases were included for analysis. Nearly half of the respondents (45.2%) reported experiencing maternal symptoms prior to TTTS diagnosis. The average number of symptoms experienced was 2.85. The average gestational week of symptom onset was 18.2. A total of 76.2% of respondents experiencing symptoms shared these concerns with their health-care provider; however, slightly more than half (51.2%) believed that the provider dismissed their complaints.Conclusions:Results suggest a disconnect between patients’ reporting TTTS symptoms and health-care providers responding attentively, as perceived by the patient. It would be adv...

【 授权许可】

CC BY