Adherence to behavioural interventions in multiple sclerosis: Follow-up meeting report (AD@MS-2):

Multiple Sclerosis Journal – Experimental, Translational and Clinical

Vicki Matthews¹  Franceso Visioli²  Lina Eliasson³  Robert Gearing⁴  Paivi Hamalainen⁵  Robert Motl⁶  Ulrik Dalgas⁷  John Weinmann⁸  Katrin Liethmann⁹  Rona Moss-Morris⁹  Daphne Kos^1,10  Paul Bissell^1,11  Christoph Heesen^1,12  Sascha Köpke^1,13  Angeliki Bogossian^1,14  Alessandra Solari^1,15  Peter Feys^1,16  Marcia Finlayson^1,17  Jared Bruce^1,19 

[1] Centre for Haematology, Imperial College London, Hammersmith Hospital, UK;University of Padova, Italy;Atlantis Healthcare, Summit, USA;Columbia University, New York, USA;Department of Kinesiology and Community Health, University of Illinois at Urbana-Champaign, USA;Department of Public Health – Sport Science, Aarhus, Denmark;Department of Rehabilitation Sciences, KU Leuven and Department of Health and Social Care, AP University College Antwerp, Belgium;Director Masku Neurological Rehabilitation Centre, Finland;Health Psychology Section, Psychology Department, Institute of Psychiatry, Psychology and Neuroscience, KCL, Guy’s Hospital Campus London, UK;IMDEA-Food, Madrid, Spain;Institute for Social Medicine and Epidemiology, University of Lübeck, Germany;Institute of Neuroimmunology and Clinical MS Research (inims) and Department of Neurology, UMC Hamburg Eppendorf, Germany;Institute of Neuroimmunology and Multiple Sclerosis and Department of Neurology, UMC Hamburg Eppendorf, Germany;MS Trust, Letchworth, UK;Neuroepidemiology Unit, Foundation Neurological Institute C. Besta, Milan, Italy;REVAL, Biomedical Research Institute (BIOMED), Hasselt University, Belgium;School of Rehabilitation Therapy, Faculty of Health Sciences, Queen's University, Kingston, Canada;Section of Public Health, School of Health and Related Research (ScHARR), The University of Sheffield, UK;University of Missouri – Kansas City, Department of Psychology, USA

关键词: Multiple sclerosis;    rehabilitation;    adherence;    behavioural interventions;    exercise;    quality of life;   

DOI  :  10.1177/2055217315585333

学科分类：医学（综合）

来源: Sage Journals

【 摘 要 】

After an initial meeting in 2013 that reviewed adherence to disease modifying therapy, the AD@MS group conducted a follow-up meeting in 2014 that examined adherence to behavioural interventions in MS (e.g. physical activity, diet, psychosocial interventions). Very few studies have studied adherence to behavioural interventions in MS. Outcomes beyond six months are lacking, as well as implementation work in the community. Psychological interventions need to overcome stigma and other barriers to facilitate initiation and maintenance of behaviour change. A focus group concentrated on physical activity and exercise as one major behavioural intervention domain in MS. The discussion revealed that patients are confronted with multiple challenges when attempting to regularly engage in physical activity. Highlighted needs for future research included an improved understanding of patients’ and health experts’ knowledge and attitudes towards physical activity as well as a need for longitudinal research that investigates exercise persistence.

【 授权许可】

CC BY-NC