Health-related quality of life from the perspective of children with severe specific language impairment

Health and Quality of Life Outcomes

Pauline Watter¹  Kristy Nicola¹ 

[1] The University of Queensland, Brisbane 4072, QLD, Australia

关键词: Quality of life;    Pediatric Quality of Life InventoryTM 4.0 Generic Core;    Communication disorders;    Health-related quality of life;    Specific language impairment;   

Others  :  1224721
DOI  :  10.1186/s12955-015-0326-1

 received in 2015-04-19, accepted in 2015-08-07,  发布年份 2015

【 摘 要 】

Background

This study aimed to evaluate the feasibility and reliability of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales (PedsQL™) for use by children with severe specific language impairment (SLI) and their parent, and to explore the health-related quality of life of children with severe SLI. We hypothesized that the PedsQL™ would be a suitable measure, and identify lower health-related quality of life compared to the healthy population sample, particularly in school and social functioning.

Methods

Forty-three out of 61 children with severe SLI enrolled at a dedicated school from February 2010 until September 2011 agreed to participate. Children and parents completed the PedsQL™ separately with support as required.

Results

The PedsQL™ proved to be suitable for this cohort. Children perceived themselves to be at risk of impaired social and physical functioning, rendering the total score below the population mean. Parents rated social and emotional functioning at risk of impairment, with the psychosocial and total summary score consequently below the population mean. Physical functioning had the largest child/parent difference, with children rating themselves below the cut-off score, and parents rating their children above the cut-off score.

Conclusions

This measure can be used with this group. Our group of children with severe SLI reported lower health-related quality of life than the healthy population mean as perceived by both the child and the parent. Health professionals working with children who have SLI need to consider not only a child’s impairment, but also their wellbeing and participation by incorporating self- and proxy-reports into assessment in order to promote meaningful therapeutic outcomes that impact positively on a child’s life.

【 授权许可】

   
2015 Nicola and Watter.

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