期刊论文详细信息
International Journal for Equity in Health
From individual coping strategies to illness codification: the reflection of gender in social science research on Multiple Chemical Sensitivities (MCS)
Katherine Lippel1  Geneviève Nadeau2 
[1] Canada Research Chair on Occupational Health and Safety Law, Faculty of Law, University of Ottawa, 603 King Edward Street, Ottawa K1N 6N5, Ontario, Canada;School of Political Studies, University of Ottawa, 120 University, Room 7005, Ottawa K1N 6N5, Ontario, Canada
关键词: Research methodology;    Social sciences;    Multiple chemical sensitivies (MCS);    Environmental health;    Environmentally-induced disabilities;    Gender-based analysis;   
Others  :  1146418
DOI  :  10.1186/s12939-014-0078-2
 received in 2014-02-08, accepted in 2014-08-28,  发布年份 2014
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【 摘 要 】

Introduction

Emerging fields such as environmental health have been challenged, in recent years, to answer the growing methodological calls for a finer integration of sex and gender in health-related research and policy-making.

Methods

Through a descriptive examination of 25 peer-reviewed social science papers published between 1996 and 2011, we explore, by examining methodological designs and theoretical standpoints, how the social sciences have integrated gender sensitivity in empirical work on Multiple Chemical Sensitivities (MCS). MCS is a ¿diagnosis¿ associated with sensitivities to chronic and low-dose chemical exposures, which remains contested in both the medical and institutional arenas, and is reported to disproportionately affect women.

Results

We highlighted important differences between papers that did integrate a gender lens and those that did not. These included characteristics of the authorship, purposes, theoretical frameworks and methodological designs of the studies. Reviewed papers that integrated gender tended to focus on the gender roles and identity of women suffering from MCS, emphasizing personal strategies of adaptation. More generally, terminological confusions in the use of sex and gender language and concepts, such as a conflation of women and gender, were observed. Although some men were included in most of the study samples reviewed, specific data relating to men was undereported in results and only one paper discussed issues specifically experienced by men suffering from MCS. Papers that overlooked gender dimensions generally addressed more systemic social issues such as the dynamics of expertise and the medical codification of MCS, from more consistently outlined theoretical frameworks. Results highlight the place for a critical, systematic and reflexive problematization of gender and for the development of methodological and theoretical tools on how to integrate gender in research designs when looking at both micro and macro social dimensions of environmental health conditions.

Conclusions

This paper contributes to a discussion on the methodological and policy implications of taking sex and gender into account appropriately in order to contribute to better equity in health, especially where the critical social contexts of definition and medico-legal recognition play a major role such as in the case of MCS.

【 授权许可】

   
2014 Nadeau and Lippel; licensee BioMed Central Ltd.

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【 参考文献 】
  • [1]Clow B, Pederson A, Haworth-Brockman M, Bernier J: Rising to the Challenge: Sex- and Gender-Based Analysis for Health Planning, Policy and Research in Canada. Atlantic Centre of Excellence for Women¿s Health, Halifax; 2009.
  • [2]Greyson D, Becu ARE, Morgan SG: Sex, drugs and gender roles: mapping the use of sex and gender-based analysis in pharmaceutical policy research. Int J Equity Health 2010, 2:26. doi:10.1186/1475-9276-9-26 BioMed Central Full Text
  • [3]Messing K, Ostlin P: Gender Equality, Work and Health: a Review of the Evidence. World Health Organisation, Geneva; 2006.
  • [4]Greaves L: Why put Gender and sex into Health Research? In Designing and Conducting Gender, Sex & Health Research. Edited by Oliffe JL, Greaves L. Sage, London; 2012:3-14.
  • [5][http://whqlibdoc.who.int/publications/2009/9789241597708_eng_Text.pdf] webcite World Health Organization (WHO): Strategy for Integrating Gender Analysis and Actions into the Work of WHO. Geneva: 2009 []
  • [6][http://www.swc-cfc.gc.ca/gba-acs/guide-eng.pdf] webcite Government of Canada (Status of Women Canada): The GBA+ Framework ¿ A Guide to Building Organizational Capacity fo Gender-Based Analysis+ (GBA+). Ottawa: 2013 []
  • [7]Schofield T: Gender, Health, Research and Public Policy. In Designing and Conducting Gender, Sex & Health Research. Edited by Oliffe JL, Greaves L. Sage, London; 2012:203-214.
  • [8]Oakley A: Sex, Gender and Society. Temple Smith, London; 1972.
  • [9]Eichler M: Non Sexist Research Methods: A Practical Guide. Routledge, New York; 1972.
  • [10]Butler J: Gender Trouble: Feminism and the Subversion of Identity. Routledge, London; 1990.
  • [11]Arbuckle TE: Are there sex and gender differences in acute exposure to chemicals in the same setting? Environ Res 2006, 101:195-204.
  • [12]Caress SM, Steinemann AC: A review of a two-phase population study of multiple chemical sensitivities. Environ Health Perspect 2003, 111:1490-1497.
  • [13]Gibson PR, Placek E, Lane J, Ostroff Brohimer S, Earehart Lovelace AC: Disability-induced identity changes in persons with multiple chemical sensitivity. Qual Health Res 2005, 15:1-23.
  • [14]Murphy M: The ¿elsewhere within here¿ and environmental illness; or, how to build yourself a body in a safe space. Configurations 2000, 8:87-120.
  • [15]Sears ME: The Medical Perspective on Environmental Sensitivities. Canadian Human Rights Commission, Ottawa; 2007.
  • [16][http:/ / www.nicnas.gov.au/ __data/ assets/ pdf_file/ 0005/ 4946/ MCS_Final_Report_Nov_2010_PDF.pdf] webcite Government of Australia (Department of Health and Ageing, Office of Chemical Safety and Environmental Health): Scientific Review Report: Multiple Chemical Sensitivity: Identifying Key Research Needs. Canberra: 2010 []
  • [17][http://www.chrc-ccdp.ca/sites/default/files/policy_sensitivity_0.pdf] webcite Canadian Human Rights Commission: Policy on Environmental Sensitivities. Ottawa: 2007 []
  • [18][http://apps.who.int/classifications/icd10/browse/2010/en] webcite World Health Organization (WHO): International Classification of Diseases (ICD-10). Geneva: 2010 []
  • [19]Gibson PR: Multiple chemical sensitivity, culture, and delegitimization: a feminist analysis. Feminism Psychol 1997, 7:475-493.
  • [20]Bartha L, Baumzweiger W, Buscher DS, Callender T, Dahl KA, Davidoff A, Donnay A, Edelson SB, Elson BD, Elliott E, Flayhan DP, Heuser G, Keyl PM, Kilburn KH, Gibson P, Jason LA, Krop J, Mazien RD, McGill RG, McTamney J, Meggs WJ, Morton W, Nass M, Oliver LC, Panjwani DD, Plumlee LA, Rapp D, Shayevitz MB, Sherman J, Singer RM: Multiple chemical sensitivity: a 1999 consensus. Arch Environ Health 1999, 54:147-149.
  • [21]Dumit J: Illnesses you have to fight to get: facts as forces in uncertain, emergent illnesses. Soc Sci Med 2006, 62:577-590.
  • [22][http:/ / www.inter-disciplinary.net/ probing-the-boundaries/ making-sense-of/ health-illness-and-disease/ project-archives/ 7th/ session-8-contested-conditions-empo wered-patients/ ] webcite Phillips T: An Injured Worker, or `Just a Shifty Bugger Trying to Milk the System?¿ The Impact of worker¿s Compensation Litigations on People With Contested Conditions. In Proceedings of the 7th Inter-Disciplinary.Net Conference. Edited by ?. Oxford: 2008 []
  • [23]Coyle F: Safe space¿ as counter-space: women, environmental illness and `corporeal chaos¿. Canadian Geogr / Le Géogr Canadien 2004, 48:62-75.
  • [24]Lipson JG, Doiron N: Environmental issues and work: women with multiple chemical sensitivities. Health Care Women Int 2006, 27:571-584.
  • [25]Phillips T: Debating the legitimacy of a contested environmental illness: a case study of multiple chemical sensitivities (MCS). Soc Health Illness 2010, 32:1026-1040.
  • [26]Kettel B: Women, health and the environment. Soc Sci Med 1996, 42:1367-1379.
  • [27]Miller CS: White paper: chemical sensitivity: history and phenomenology. Toxicol Ind Health 1994, 10:253-276.
  • [28]Arksey H, O¿Malley L: Scoping Studies: Towards a Methodological Framework. Int J Soc Res Methodol 2005, 8:19-32.
  • [29]Custer WV: Multiple chemical sensitivity syndrome: the wavering influence of the courts on public Policy. Regul Toxicol Pharmacol 1996, 24:S182-S187.
  • [30]Winterbauer SH: Multiple chemical sensitivity and the ADA: taking a clear Picture of a blurry object. Employee Relat Law J 1997, 23:69-104.
  • [31]Gibson PR, Elms ANM, Ruding LA: Perceived treatment efficacy for conventional and alternative therapies reported by persons with multiple chemical sensitivity. Environ Health Perspect 2003, 111:1498-1504.
  • [32]Nordin M, Andersson L, Nordin S: Coping strategies, social support and responsibility in chemical intolerance. J Clin Nurs 2010, 19:2162-2173.
  • [33]Peachey-Hill C, Law M: Impact of environmental sensitivity on occupational performance. Can J Occup Ther 2000, 67:304-313.
  • [34]Dyer RS, Sexton K: What can research contribute to regulatory decisions about the health risks of multiple chemical sensitivity? Regul Toxicol Pharmacol 1996, 24:S139-S151.
  • [35]Johnson J, Greaves L, Repta R: Better science with sex and gender: facilitating the use of a sex and gender-based analysis in health research.Int J Equity Health 2010, http://dx.doi.org/10.1186/1475-9276-8-14.
  • [36]Johnson J, Repta R: Sex and Gender: Beyond the Binaries. In Designing and Conducting Gender, Sex & Health Research. Edited by Oliffe JL, Greaves L. Sage, London; 2012:17-38.
  • [37]Bottorff JL, Oliffe JL, Kelly MT, Chambers NA: Approaches to Examining Gender Relations in Health Research. In Designing and Conducting Gender, Sex & Health Research. Edited by Oliffe JL, Greaves L. Sage, London; 2012:175-188.
  • [38]Doiron NH: People With Environmental Sensitivities: Life, Identity, and Services. University of Toronto, Faculty of Social Work, Toronto; 2007.
  • [39]Lipson JG: We are the canaries: self-care in multiple chemical sensitivity sufferers. Qual Health Res 2001, 11:102-116.
  • [40]Chircop A, Keddy B: Women living with environmental illness. Health Care Women Internat 2003, 24:371-383.
  • [41]Coyle FJ, Coyle FJ: Safe Space in ¿Risk Society¿? Bodies, Environments and the Complex Case of Environmental Illness. University of Toronto, Department of Geography, Toronto; 2002.
  • [42]Coyle FJ: `It just doesn¿t seem to fit¿. Environmental illness, corporeal chaos and the body as a complex system. J Eval Clin Pract 2009, 15:770-775.
  • [43]Fletcher CM: Environmental sensitivity: equivocal illness in the context of place. Transcult Psychiatry 2006, 43:86-105.
  • [44]Lipson JG: Multiple chemical sensitivities: stigma and social experiences. Med Anthropol Quater 2004, 18:200-213.
  • [45]Phillips T: ¿I never wanted to be a quack!¿ - the professional deviance of plaintiff experts in contested illness lawsuits: the case of multiple chemical sensitivities. Med Anthropol Q 2010, 24:182-198.
  • [46]Gibson PR, Cheavens J, Warren ML: Chemical sensitivity/chemical injury and life disruption. Women Therap 1996, 19:63-79.
  • [47]Gibson PR: Of the world but not in it: barriers to community access and education for persons with environmental sensitivities. Health Care Women Int 2010, 31:3-16.
  • [48]Gibson PR: Hope in multiple chemical sensitivity: social support and attitude towards healthcare delivery as predictors of hope. J Clin Nurs 1999, 8:275-283.
  • [49]Gibson PR, Lindberg A: Work accommodation for people with multiple chemical sensitivity. Disab Soc 2007, 22:717-732.
  • [50]Gibson P, Sledd LG, McEnroe WH, Vos AP: Isolation and lack of access in multiple chemical sensitivity: a qualitative study. Nurs Health Sci 2011, 13:232-237.
  • [51]Skovbjerg SB, Rasmussen A, Johansen JD, Elberling J: Impact of self-reported multiple chemical sensitivity on everyday life: a qualitative study. Scandinavian J Public Health 2009, 39:621-626.
  • [52]Swoboda DA: Negotiating the diagnostic uncertainty of contested illnesses: physician practices and paradigms. Health (London) 2008, 12:453-478.
  • [53]Arnolda C, Shawa L, Landry G: Using metaphors to study occupational transitions: a case study of an injured worker with multiple chemical sensitivity. Work 2009, 32:467-475.
  • [54]Gibson PR: Chemical and electromagnetic exposures as disability barriers: environmental sensitivity. Disab Soc 2009, 24:187-199.
  • [55]MacKendrick N: Media framing of body burdens: precautionary consumption and the individualization of risk. Sociol Inq 2010, 80:126-149.
  • [56]Messing K, Punnett L, Bond M, Alexanderson K, Zahm S, Wegman D, Stock SR, de Grosbois S: Be the fairest of them all: challenges and recommendations for the treatment of gender in occupational health research. Am J Ind Med 2003, 43:618-629.
  • [57]Johnson J, Repta R, Kalyan S: Implications of Sex and Gender for Health Research: From Concepts to Study Design. In Designing and Conducting Gender, Sex & Health Research. Edited by Oliffe JL, Greaves L. Sage, London; 2012:39-64.
  • [58]Spitzer DL: Gender and Sex-Based Analysis in Health Research: A Guide for CIHR Researchers and Reviewers. Canadian Institutes of Health Research, Ottawa; 2007.
  • [59]Hawkesworth M: Policy studies within a feminist frame. Policy Sci 1994, 27:97-118.
  • [60]Paterson S: What¿s the problem with gender-based analysis? gender mainstreaming policy and practice in canada. Canadian Public Admin 2010, 53:395-416.
  • [61]Parsons T: The Social System. Routledge, New York; 1951.
  • [62]Krieger N: Embodiment: a conceptual glossary for epidemiology. J Epidemiol Community 2005, 59:350-355. Health
  • [63]Hankivsky O, Reid C, Cormier R, Varcoe C, Clark N, Benoit C, Brotman S: Exploring the promises of intersectionality for advancing women¿s health research.Int J Equity Health 2010, doi:10.1186/1475-9276-9-5.
  • [64]Phillips T: Repressive authenticity in the quest for legitimacy: surveillance and the contested illness lawsuit. Soc Sci Med 2013, 75:1762-1768.
  • [65][http://www.cihr-irsc.gc.ca/e/32019.html] webcite Canadian Institutes of Health Research: Gender, Sex and Health Research Guide: A Tool for CIHR Applicants. Ottawa: 2012 []
  • [66][http://grants.nih.gov/grants/guide/notice-files/NOT-OD-14-086.html] webcite National Institutes of Health: NIH Launching New System and Procedures for Reporting Sex/Gender, Race, and Ethnicity Information to the NIH. Washington: 2014. .
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