Establishing a community-based participatory research partnership among people who use drugs in Ottawa: the PROUD cohort study

Harm Reduction Journal

Mark W Tyndall¹  Kira Mandryk²  Dolly Lin⁵  Kristen Weersink⁵  Zack Marshall³  Alana Martin⁴  Sean LeBlanc⁶  Ashley Shaw⁴  Lisa Lazarus⁴ 

[1] University of Ottawa at the Ottawa Hospital, Division of Infectious Diseases, Ottawa, Canada;Ottawa Public Health, Ottawa, Canada;Memorial University of Newfoundland, Division of Community Health and Humanities, St John’s, Canada;Ottawa Hospital Research Institute, 216 Murray Street, Ottawa, ON K1N 5N1, Canada;Department of Medicine, University of Ottawa, Ottawa, Canada;Drug Users Advocacy League, Ottawa, Canada

关键词: Ottawa;    HIV;    Harm reduction;    Drug use;    CBPR;   

Others  :  1133860
DOI  :  10.1186/1477-7517-11-26

 received in 2014-04-08, accepted in 2014-09-22,  发布年份 2014

【 摘 要 】

Background

Grounded in a community-based participatory research (CBPR) framework, the PROUD (Participatory Research in Ottawa: Understanding Drugs) Study aims to better understand HIV risk and prevalence among people who use drugs in Ottawa, Ontario. The purpose of this paper is to describe the establishment of the PROUD research partnership.

Methods

PROUD relies on peers’ expertise stemming from their lived experience with drug use to guide all aspects of this CBPR project. A Community Advisory Committee (CAC), comprised of eight people with lived experience, three allies and three ex-officio members, has been meeting since May 2012 to oversee all aspects of the project. Eleven medical students from the University of Ottawa were recruited to work alongside the committee. Training was provided on CBPR; HIV and harm reduction; and administering HIV point-of-care (POC) tests so that the CAC can play a key role in research design, data collection, analysis, and knowledge translation activities.

Results

From March-December 2013, the study enrolled 858 participants who use drugs (defined as anyone who has injected or smoked drugs other than marijuana in the last 12 months) into a prospective cohort study. Participants completed a one-time questionnaire administered by a trained peer or medical student, who then administered an HIV POC test. Recruitment, interviews and testing occurred in both the fixed research site and various community settings across Ottawa. With consent, prospective follow-up will occur through linkages to health care records available through the Institute for Clinical and Evaluation Sciences.

Conclusion

The PROUD Study meaningfully engaged the communities of people who use drugs in Ottawa through the formation of the CAC, the training of peers as community-based researchers, and integrated KTE throughout the research project. This project successfully supported skill development across the team and empowered people with drug use experience to take on leadership roles, ensuring that this research process will promote change at the local level. The CBPR methods developed in this study provide important insights for future research projects with people who use drugs in other settings.

【 授权许可】

   
2014 Lazarus et al.; licensee BioMed Central Ltd.

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