Annotated bibliography on participatory consultations to help aid the inclusion of marginalized perspectives in setting policy agendas

International Journal for Equity in Health

Faraz Rahim Siddiqui¹ 

[1]O’Neill Institute for National and Global Health Law, Georgetown University Law Center, 600 New Jersey Avenue, NW Washington 20001, DC, USA

关键词: Methods;    Frameworks;    Priorities;    MDGs;    Post-2015;    Marginalization;    Inclusion;    Consultations;    Participation;   

Others  :  1139406
DOI  :  10.1186/s12939-014-0124-0

 received in 2014-03-13, accepted in 2014-12-02,  发布年份 2014

【 摘 要 】

The purpose of this bibliography is to present studies from peer-reviewed and grey literature that used consultations and other participatory strategies to capture a community’s perspective of their health priorities, and of techniques used to elevate participation from the implementation phase to a more upstream phase of prioritization, policymaking and agenda setting. The focus here is of those studies that worked with marginalized populations or sub-populations. This bibliography contains four areas of research. It begins by first offering some philosophical and conceptual frameworks that link participatory interventions with inclusive policy making or agenda setting, and a rationale for prioritizing marginalized populations in such an undertaking. After situating ourselves in this manner, the second section looks at various participatory instruments for participatory consultations, for reaching out to marginalized populations, and for communicating the results to policymakers. Two sets of distinctions are made here: one between external (non-invitation) and internal (stifling of opinions) exclusion, and between mere participation and from active inclusion within consultations and within the policies. In the third section, examples of consultations that created or changed policy in various jurisdictions are shared, followed by a final section on a reflective and evaluative look at the recruitment, instruments and examples. An earlier iteration of this bibliography was created to assist a multi-country research project by the author to inform the UN Post-2015 development framework of the views of several diverse and highly marginalized populations around the world on their health-related priorities.

【 授权许可】

   
2014 Siddiqui; licensee BioMed Central.

【 参考文献 】

• [1]55/2. United Nations Millennium Declaration [http://www.un.org/millennium/declaration/ares552e.htm]
• [2]Byskov J, Bloch P, Blystad A, Hurtig AK, Fylkesnes K, Kamuzora P, Kombe Y, Kvåle G, Marchal B, Martin DK, Michelo C, Ndawi B, Ngulube TJ, Nyamongo I, Olsen OE, Onyango-Ouma W, Sandøy IF, Shayo EH, Silwamba G, Songstad NG, Tuba M: Accountable priority setting for trust in health systems--the need for research into a new approach for strengthening sustainable health action in developing countries. Health Res Policy Syst. 2009,7(Suppl 23). [http://www.health-policy-systems.com/content/7/1/23]
• [3]Meier BM, Fox AM: International obligations through collective rights: Moving from foreign health assistance to global health governance. Health Hum Rights 2010, 12(Suppl 1):61-72. http://www.unc.edu/~meierb/Meier%20&%20Fox%202010.pdf
• [4]de Salazar L, Jackson S, Shiell A, Rice M: Guide to economic evaluation in health promotion. Pan American Health Organization, Washington; 2007.
• [5]Jamison DT, Breman JG, Measham AR, Alleyne G, Claeson M, Evans DB, Jha P, Mills A, Musgrove P: Cost-effectiveness Analysis. In Priorities in Health. World Bank, Washington, DC; 2006. http://www.ncbi.nlm.nih.gov/books/NBK10253/
• [6]Participate: Knowledge from the margins for post-2015 [http://www.ids.ac.uk/participate]
• [7]United Nations Development Group: The Global Conversation Begins: Emerging Views for a New Development Agenda. New York; 2013. [http://www.undp.org/content/dam/undp/library/MDG/english/global-conversation-begins-web.pdf]
• [8]Wang CC, Yi WK, Tao ZW, Carovano K: Photovoice as a participatory health promotion strategy. Health Promot Int 1998, 13(Suppl 1):75-86. http://dx.doi.org/10.1093/heapro/13.1.75
• [9]Lois AS: Moving Beyond Rhetoric: Consultation and Participation with Populations Displaced by Conflict or Natural Disasters. Brookings Institution, Washington, DC; 2009.
• [10]Thompson JR, Elmendorf WF, McDonough MH, Burban LL: Participation and conflict: Lessons learned from community forestry. J Forest 2005, 103(Suppl 4):174-178. http://works.bepress.com/janette_thompson/4/
• [11]Welbourn A: A note on the use of disease problem ranking with relation to socio-economic well-being: an example from Sierra Leone. RRA Notes IIED London 1992, 16:86-87. pubs.iied.org/pdfs/G01451.pdfl
• [12]Battaglia MP: Nonprobability Sampling. [http:/ / www.sagepub.com/ chambliss4e/ study/ chapter/ encyc_pdfs/ 5.2_Nonprobability%20Sampling.pdf] webciteIn Encyclopedia of Survey Research Methods Edited by Lavrakas PJ. SAGE Publications, Thousand Oaks; 2011. http://www.sagepub.com/chambliss4e/study/chapter/encyc_pdfs/5.2_Nonprobability%20Sampling.pdf
• [13]Roussos ST, Fawcett SB: A review of collaborative partnerships as a strategy for improving community health. Annu Rev Public Health 2000, 21(1):369-402.
• [14]Macaulay AC, Commanda LE, Freeman WL, Gibson N, McCabe ML, Robbins CM, Twohig PL: Participatory research maximises community and lay involvement. BMJ 1999, 319(7212):774.
• [15]Ndiaye P, Ndiaye NM, Diongue M, Faye A, Dia AT: Community participation for a latrine project in Senegalese rural area. Sante Publique 2010, 22(Suppl 1):147-154. http://europepmc.org/abstract/MED/20441631/
• [16]O’Meara WP, Tsofa B, Molyneux S, Goodman C, McKenzie FE: Community and facility-level engagement in planning and budgeting for the government health sector - A district perspective from Kenya. Health Policy 2011, 99(Suppl 3):234-243. http://ora.ox.ac.uk/objects/uuid:15be7752-96b5-4d82-ac77-2dd99cc8ea8c
• [17]Wallington T, Lawrence G, Loechel B: Reflections on the legitimacy of regional environmental governance: Lessons from Australia’s experiment in natural resource management. J Environ Poli Plann 2008, 10(Suppl 1):1-30. http://dx.doi.org/10.1080/15239080701652763
• [18]Hasman A, Holm S: Accountability for Reasonableness: Opening the black box of process. Health Care Anal 2005, 13(Suppl 4):261-273. http://www.ncbi.nlm.nih.gov/pubmed/16435464
• [19]International Labour Organization: Indigenous and Tribal Peoples Convention, No. 169. Geneva; 1989. [http://www.ilo.org/dyn/normlex/en/f?p=NORMLEXPUB:12100:0::NO::P12100_ILO_CODE:C169]
• [20]Inter-American Commission for Human Rights: Right to Prior Free and Informed Consultation of Indigenous Peoples and Afro-descendants in the Andean Region. http://hrbrief.org/2011/03/right-to-prior-free-and-informed-consultation-of-indigenous-peoples-and-afro-descendants-in-the-andean-region/
• [21]United Nations Sustainable Development: United Nations Conference on Environment & Development. [http://sustainabledevelopment.un.org/content/documents/Agenda21.pdf]
• [22]James H: Cooperation and community empowerment in Myanmar in the context of Myanmar Agenda 21. Asian-Pac Econ Lit 2003, 17(Suppl 1):1-21. http://dx.doi.org/10.1111/1467-8411.t01-2-00020
• [23]Gruber J: Making development more “fit for purpose”: How to support greater civil society participation. Progr Dev Stu 2011, 11(Suppl 1):19-32. http://pdj.sagepub.com/content/11/1/19
• [24]Orr K, Lee S, Edstrom J: Community participation: a “must” for enabling HIV/AIDS prevention in Africa to “move beyond awareness raising”. AIDS Anal Af 1997, 7(Suppl 6):13-15. www.ncbi.nlm.nih.gov/pubmed/12348321
• [25]Patterson AS: Church mobilisation and HIV/AIDS treatment in Ghana and Zambia: A comparative analysis. Africa J AIDS Res 2011, 9(Suppl 4):407-418. http://dx.doi.org/10.2989/16085906.2010.545653
• [26]Mitlin D, Mogaladi J: Social movements and the struggle for shelter: A case study of eThekwini (Durban). Progr Plann 2013, 84:1-39. http://www.researchgate.net/publication/259126251_Social_movements_and_the_struggle_for_shelter_A_case_study_of_eThekwini_(Durban
• [27]McCormick A: Some partners are more equal than others: EFA and Civil Society in Papua New Guinea and Vanuatu education policy processes. Int Educ J 2011, 10(Suppl 2):54-70. http://ojs-prod.library.usyd.edu.au/index.php/IEJ/article/download/6750/7395
• [28]Simpungwe EL: Water, Stakeholders and Common Ground: Challenges for multi-stakeholder platforms in water resource management in South Africa. Wageningen University, Wageningen; 2006.
• [29]Allison MC: Balancing responsibility for sanitation. Soc Sci Med 2002, 55(Suppl 9):1539-1551. http://www.ncbi.nlm.nih.gov/pubmed/12297240