Consensus on quality indicators to assess the organisation of palliative cancer and dementia care applicable across national healthcare systems and selected by international experts

BMC Health Services Research

Yvonne Engels¹  Kris Vissers¹  Lukas Radbruch⁴  Rose-Marie Dröes⁵  Myrra Vernooij-Dassen²  Jasper van Riet Paap³ 

[1] Department of Anaesthesiology, Pain and Palliative Medicine, Radboud university medical center, P.O. Box 9101, 6500, HB, Nijmegen, The Netherlands;Kalorama Foundation, Nijmegen, The Netherlands;Scientific Institute for Quality of Healthcare (IQ healthcare), Radboud university medical center, P.O. Box 9101, 6500, HB, Nijmegen, The Netherlands;Department of Palliative Medicine, Universitätsklinikum Bonn, and Department of Palliative Care, Malteser Hospital Bonn, Sigmund-Freud-Street 25, 53127 Bonn, Rhein-Sieg, Germany;Department of General practice & Elderly care medicine and Department of Psychiatry, VU University Medical Centre, P.O. Box 7057, 1081, BT, Amsterdam, The Netherlands

关键词: Europe;    Cancer;    Dementia;    Quality indicators;    Palliative care;   

Others  :  1126425
DOI  :  10.1186/1472-6963-14-396

 received in 2014-04-25, accepted in 2014-09-09,  发布年份 2014

【 摘 要 】

Background

Large numbers of vulnerable patients are in need of palliative cancer and dementia care. However, a wide gap exists between the knowledge of best practices in palliative care and their use in everyday clinical practice. As part of a European policy improvement program, quality indicators (QIs) have been developed to monitor and improve the organisation of palliative care for patients with cancer and those with dementia in various settings in different European countries.

Method

A multidisciplinary, international panel of professionals participated in a modified RAND Delphi procedure to compose a set of palliative care QIs based on existing sets of QIs on the organisation of palliative care. Panellists participated in three written rounds, one feedback round and one meeting. The panel’s median votes were used to identify the final set of QIs.

Results

The Delphi procedure resulted in 23 useful QIs. These QIs represent key elements of the organisation of good clinical practice, such as the availability of palliative care teams, the availability of special facilities to provide palliative care for patients and their relatives, and the presence of educational interventions for professionals. The final set also includes QIs that are related to the process of palliative care, such as documentation of pain and other symptoms, communication with patients in need of palliative care and their relatives, and end-of-life decisions.

Conclusion

International experts selected a set of 23 QIs for the organisation of palliative care. Although we particularly focused on the organisation of cancer and dementia palliative care, most QIs are generic and are applicable for other types of diseases as well.

【 授权许可】

   
2014 van Riet Paap et al.; licensee BioMed Central Ltd.

【 图 表 】

Figure 1.

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