期刊论文详细信息
BMC Medical Research Methodology
Recruiting and motivating black subjects to complete a lengthy survey in a large cohort study: an exploration of different strategies
Gary Fraser1  Susanne B Montgomery3  Hannelore Bennett1  Sonja Hall1  Terry Butler1  Patti Herring2 
[1] School of Public Health, Biostatistics & Epidemiology, Loma Linda University, 24951 North Circle Dr, NH 2005, Loma Linda, CA 92350, USA;School of Public Health, Loma Linda University, 1709 Nichol Hall, Loma Linda, CA 92350, USA;Behavioral Health Institute, Loma Linda University, 1686 Barton Rd, Loma Linda, CA 92373, USA
关键词: Sub-studies;    Incentives;    Multiple strategies;    Revisit;    Re-promotion;    Promotion;    Recruitment;    Enrollment;    African American;    Black;   
Others  :  866368
DOI  :  10.1186/1471-2288-14-46
 received in 2013-07-16, accepted in 2014-03-24,  发布年份 2014
PDF
【 摘 要 】

Background

The effectiveness of multiple innovative recruitment strategies for enrolling Black/African American participants to the Adventist Health Study-2 (AHS-2) is described. The study’s focus is diet and breast, prostate and colon cancer.

Methods

Promotions centered on trust, relationship building and incentives for increasing enrollment and questionnaire return rate. Of the sub-studies described, one had a randomized control group, and the others, informal controls. The subjects are from all states of the U.S. and some provinces of Canada. The offer of a Black art piece, follow-up calls, a competitive tournament as well as other strategies accounted for nearly 3,000 additional returns even though they were often used in small subsets.

Results

Flexibility and multiple strategies proved advantageous in gaining the cooperation of Blacks, who are usually reluctant to participate in research studies.

Conclusions

Lessons learned during initial enrollment should help us retain our final Black cohort of 26,000, and obtain new information when required.

【 授权许可】

   
2014 Herring et al.; licensee BioMed Central Ltd.

【 预 览 】
附件列表
Files Size Format View
20140727071720121.pdf 242KB PDF download
【 参考文献 】
  • [1]Ford JG, Howerton MW, Bolen S, Gary TL, Lai GY, Tilburt J, Gibbons MC, Baffi C, Wilson RF, Feuerstein CJ, Tanpitukpongse P, Powe NR, Bass EB: Knowledge and access to information on recruitment of underrepresented populations to cancer clinical trials. Evid Rep Technol Assess (Summ) 2005, 1-11. Available at: http://archive.ahrq.gov/downloads/pub/evidence/pdf/recruitcantrials/recruit.pdf webcite
  • [2]Corbie-Smith G, Thomas SB, Williams MV, Moody-Ayers S: Attitudes and beliefs of African Americans toward participation in medical research. J Gen Intern Med 1999, 14:537-546.
  • [3]UyBico SJ, Pavel S, Gross CP: Recruiting vulnerable populations into research: a systematic review of recruitment interventions. J Gen Intern Med 2007, 22:852-863.
  • [4]Herring P, Montgomery S, Yancey AK, Williams D, Fraser G: Understanding the challenges in recruiting blacks to a longitudinal cohort study: the Adventist health study. Ethn Dis 2004, 14:423-430.
  • [5]Bell LS, Butler TL, Herring RP, Yancey AK, Fraser GE: Recruiting blacks to the Adventist health study: Do follow-up phone calls increase response rates? Ann Epidemiol 2005, 15:667-672.
  • [6]The NIH policy and guidelines on the Inclusion of women and minorities as subjects in clinical research - Amended October: The revitalization Act of 1993, PL 103–43. 131–133 . Amended, October, 2001. 23rd edition. Edited by USDoHaH S. National Institute of Health; 1993.
  • [7]Butler TL, Fraser GE, Beeson WL, Knutsen SF, Herring RP, Chan J, Sabate J, Montgomery S, Haddad E, Preston-Martin S: Cohort profile: the Adventist health study-2 (AHS-2). Int J Epidemiol 2008, 37:260-265.
  • [8]Herring RP, Butler T, Hall S, Montgomery SB, Fraser GE: Recruiting black Americans in a large cohort study: the Adventist health study-2 (AHS-2) design, methods and participant characteristics. Ethn Dis 2010, 20:437-443.
  • [9]Yancey AK, Herring RP, Fraser GE, Yan R, Baker P, Lampkin A, Kyle J: Black art posters, an incentive to increase study enrollment among blacks in a large cohort study. Prev Med 2008, 46:370-373.
  • [10]McCullagh P, Nelder JA: Generalized linear models. London, New York: Chapman and Hall; 1983.
  • [11]Nicholson LM, Schwirian PM, Klein EG, Skybo T, Murray-Johnson L, Eneli I, Boettner B, French GM, Groner JA: Recruitment and retention strategies in longitudinal clinical studies with low-income populations. Contemp Clin Trials 2011, 32:353-362.
  • [12]Reeve J, Deci EL: Elements of the competitive situation that affect intrinsic motivation. Pers Soc Psychol Bull 1996, 22:24-33.
  • [13]Corbie-Smith G, Goldmon M, Isler MR, Washington C, Ammerman A, Green M, Bunton A: Partnerships in health disparities research and the roles of pastors of black churches: potential conflict, synergy, and expectations. J Natl Med Assoc 2010, 102:823-831.
  • [14]Williams IC US, Jones R, Hinton I, Steeves R, Alexander G: Recruitment of rural African Americans for research projects: lessons learned. In Southern online journal of nursing research. 11th edition. Southern Nursing Research Society; 2011. Vol 11, number 1. Southern Online Journal of Nursing Research [serial online]. 2011; 11:17
  • [15]Anthony JS, Lee RC, Barry DG, Kappesser M: Recruiting and keeping African American women in an ethnographic study of pregnancy: the community-based partnership model. Field Methods 2010, 22:125-132.
  • [16]Fuqua SR, Wyatt SB, Andrew ME, Sarpong DF, Henderson FR, Cunningham MF, Taylor HA: Recruiting African-American research participation in the Jackson heart study: methods, response rates, and sample description. Ethn Dis 2005, 15:S18-S29.
  • [17]Yancey AK, Ortega AN, Kumanyika SK: Effective recruitment and retention of minority research participants. Annu Rev Public Health 2006, 27:1-28.
  • [18]Dickert N, Grady C: What's The price of a research subject? approaches to payment for research participation. N Engl J Med 1999, 341:198-203.
  • [19]Markens S, Fox SA, Taub B, Gilbert ML: Role of black churches in health promotion programs: lessons from the Los Angeles mammography promotion in churches program. Am J Public Health 2002, 92:805-810.
  文献评价指标  
  下载次数:18次 浏览次数:45次