期刊论文详细信息
BMC Nursing
An exploration of self-management support in the context of palliative nursing: a modified concept analysis
Patricia Cholewka3  Aurelija Blaževičienė1  Jurate Macijauskiene1  Liz Rogerson4  Bridget Johnston2 
[1] Faculty of Nursing, Lithuanian University of Health Sciences, Mickeviciaus 9, Kaunas, LT-44307, Lithuania;Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care, School of Health Sciences, University of Nottingham, Queen’s Medical Centre, Derby Road, Nottingham NG7 2HA, UK;Department of Nursing, New York City College of Technology, CUNY, 300 Jay Street, P-505, Brooklyn, NY 11201, USA;School of Nursing and Midwifery, University of Dundee, 11 Airlie Place, Dundee Scotland, DD1 4HJ, UK
关键词: Literature review;    Concept analysis;    Education;    Death and dying;    Nursing;    Palliative;    Self-management;    Self-care;   
Others  :  1091048
DOI  :  10.1186/1472-6955-13-21
 received in 2013-03-22, accepted in 2014-06-26,  发布年份 2014
PDF
【 摘 要 】

Background

The role of self-management is often ambiguous, yet, it is an important area in clinical practice for palliative nurses. A clear conceptual understanding, however, of what it represents is lacking.

Method

This paper reports an analysis of the concept of self-management support in palliative nursing.

Avant and Walker’s method was used to guide this concept analysis.

A search of electronic databases (1990–2013), use of internet search engines and supplementary hand searching produced an international data set of reviews, empirical research, editorials, protocols and guidelines.

Results

Based on the analysis self-management support in palliative nursing has been defined as assessing, planning, and implementing appropriate care to enable the patient to live until they die and supporting the patient to be given the means to master or deal with their illness or their effects of their illness themselves.

Conclusions

Clarity with the concept of self-management support and palliative nursing could enable nurses to provide more patient and family centred care to people facing life threatening illnesses.

【 授权许可】

   
2014 Johnston et al.; licensee BioMed Central Ltd.

【 预 览 】
附件列表
Files Size Format View
20150128165156673.pdf 550KB PDF download
Figure 1. 91KB Image download
【 图 表 】

Figure 1.

【 参考文献 】
  • [1]Bury M, Newbould J, Taylor D: A rapid review of the current state of knowledge regarding lay led self management of chronic illness: evidence review. London: National Institute for Health and Clinical Excellence; 2005.
  • [2]Johnston B, McGill M, Milligan S, McElroy D, Foster C, Kearney N: Self care and end of life care in advanced cancer: Literature review. Eur J Oncol Nurs 2009, 13(5):386-398.
  • [3]Department of Health: Self Care - A Real Choice: Self Care Support - A Practical Option. London: Department of Health; 2005.
  • [4]Curtin R, Mapes D, Schatell D, Burrows-Hudson S: Self-management in patients with end stage renal disease: exploring domains and dimensions. Nephrol Nurs J 2005, 32:389.
  • [5]Jones MC, MacGillivray S, Kroll T, Zohoor AR, Connaghan J: A thematic analysis of the conceptualisation of self-care, sel-management and self-management support in the long term conditions management literature. J Nurs Healthc Chronic Illness 2011, 3:174-185.
  • [6]Scottish Government: Better Health, Better Care: Action Plan. Edinburgh: Scottish Government; 2007.
  • [7]World Health Organisation (WHO) 2014. http://www.who.int/healthpromotion/conferences/7gchp/track2/en/ webcite
  • [8]Johnston B, Milligan S, Foster C, Kearney N: Self-care and end of life care—patients’ and carers’ experience a qualitative study utilising serial triangulated interviews. Supportive Care Cancer 2012, 20:1619-1627.
  • [9]Lin H, Bauer-Wu S: Psycho-spiritual well-being in patients with advanced cancer: an integrative review of the literature. J Adv Nurs 2003, 44:69-80.
  • [10]Zabalegui A: Coping strategies and psychological distress in patients with advanced cancer. 1999, 1511.
  • [11]Leydon GM, Boulton M, Moynihan C, Jones A, Mossman J, Boudioni M, McPherson K: Cancer patients’ information needs and information seeking behaviour: in depth interview study. BMJ 2000, 320(7239):909-913.
  • [12]Cutcliffe JR, McKenna H: The Essential Concepts of Nursing. Edinburgh: Churchill Livingstone; 2005.
  • [13]Paley J: How not to clarify concepts in nursing. J Adv Nurs 1996, 24:572-576.
  • [14]Rodgers BL, Knafl KA: Concept Development in Nursing. 2nd edition. Philadephia: Saunders; 2000.
  • [15]Morse JM, Hupcey JE, Mitcham C, Lenz ER: Concept analysis in nursing research: a critical appraisal. Res Theory Nurs Pract 1996, 10(3):253-277.
  • [16]Walker L, Avant K: Strategies for Theory Construction in Nursing. 5th edition. Upper Saddle River, NJ: Prentice Hall; 2010.
  • [17]Kettles A: A concept analysis of forensic risk. J Psychiatr Ment Health Nurs 2004, 11:484-493.
  • [18]Websearch workshop 2013. http://www.websearchworkshop.co.uk webcite
  • [19]Oxford dictionnaires online 2013. http://oxforddictionaries.com/ webcite
  • [20]Dictionary.com 2013. http://dictionary.reference.com/ webcite
  • [21]Improving Chronic Illness Care 2013. http://www.improvingchroniccare.org/index.php?p=Self-Management_Support&s=22 webcite
  • [22]NHS Scotland: Long Term Conditions Collaborative Improving Self Management Support. Edinburgh: Scottish Government; 2009. http://www.scotland.gov.uk/Resource/Doc/274194/0082012.pdf webcite
  • [23]Scottish Government: Living and Dying Well: A National Action Plan for Palliative and End of Life Care in Scotland. Edinburgh: Scottish Government; 2008.
  • [24]Martin-Moreno J, Harris M, Gorgojo L, Clark D, Normand C, Carlos C: Palliative Care in the European Union. Brussels: European Parliament Economic and Scientific Policy Department; 2008. IP/A/ENVI/ST/2007-22. PE 404.899 [Online] Available at: http://www.europarl.europa.eu/activities/ webcite committees/studies/download.do?file= 21421
  • [25]Ahmedzai S, Costa A, Blengini C, Bosch A, Sanz-Ortiz J, Ventafridda V, Verhagen S: A new international framework for palliative care. Eur J Cancer 2004, 40(15):2192-2200.
  • [26]WHO: Definition of Palliative Care. 2013. http://www.who.int/cancer/palliative/definition/en/ webcite]
  • [27]Johnston B, Smith L: Nurses’ and patients’ perceptions of expert palliative nursing care. J Adv Nurs 2006, 54:700-709.
  • [28]Levin LS, Katz AH, Holst E: Self-Care: Lay Initiatives in Health. London: Croom Helm; 1977.
  • [29]Johnston B: Introduction to Palliative Care: Overview of Nursing Developments. In Palliative Care: The Nursing Role. 2nd edition. Edinburgh: Churchill Livingstone; 2005:1-32.
  • [30]Payne S, Seymour J, Ingleton C: Palliative Care Nursing. 2nd edition. Berkshire: Open University Press; 2008.
  • [31]Kralik D, Koch T, Price K, Howard N: Chronic illness self-management: taking action to create order. J Clin Nurs 2004, 13(2):259-267.
  • [32]Koch T, Jenkin P, Kralik D: Chronic illness self-management: locating the self. J Adv Nurs 2004, 48(5):484-492.
  • [33]Orem DE: Nursing: Concepts of Practice. 6th edition. St Louis, USA: St. Louis Mosby; 2001.
  • [34]Corner J: Guest editorial. Self management in palliative care.
  • [35]Brock C, Dost A: Self Care - A Real Choice. London: Department of Health; 2005.
  • [36]Scottish Government: Building a Health Service Fit for the Future. Edinburgh: Scottish Government; 2005.
  • [37]Scottish Government: NHS Scotland Quality Strategy - Putting People at the Heart of our NHS. Edinburgh: Scottish Government; 2010.
  • [38]Bottorff JL, Steele R, Davies B, Garossino C, Porterfield P, Shaw M: Striving for balance: palliative care patients’ experiences of making everyday choices. J Palliat Care 1998, 14(1):7.
  • [39]Foster C, Hopkinson J, Hill H, Wright D: Supporting self management of people affected by cancer: a review of the evidence. Southampton: University of Southampton; 2005.
  • [40]Raudonis BM: The meaning and impact of empathic relationships in hospice nursing. Cancer Nurs 1993, 16(4):304.
  • [41]Jarrett N, Payne S, Turner P, Hillier R: ˜Someone to talk to“˜pain control” what people expect from a specialist palliative care team. Palliat Med 1999, 13(2):139-144.
  • [42]O’berle K, Davies B: Support and caring: exploring the concepts. Oncol Nurs Forum 1992, 19(5):763-767.
  • [43]Davies B, Oberle K: Dimensions of the supportive role of the nurse in palliative care. Oncol Nurs Forum 1990, 17:87.
  • [44]Degner LF, Gow CM, Thompson LA: Critical nursing behaviors in care for the dying. Cancer Nurs 1991, 14(5):246.
  • [45]Skilbeck J, Seymour J: Meeting complex needs: an analysis of Macmillan nurses’ work with patients. Int J Palliat Nurs 2002, 8(12):574.
  • [46]Skilbeck J, Payne S: End of life care: a discursive analysis of specialist palliative care nursing. J Adv Nurs 2005, 51(4):325-334.
  • [47]Skilbeck J, Payne S: Emotional support and the role of clinical nurse specialists in palliative care. J Adv Nurs 2003, 43(5):521-530.
  • [48]Chapple A, Ziebland S, McPherson A: The specialist palliative care nurse: a qualitative study of the patients’ perspective. Int J Nurs Stud 2006, 43(8):1011-1022.
  • [49]Steeves R, Cohen MZ, Wise CT: An analysis of critical incidents describing the essence of oncology nursing. Oncol Nurs Forum 1994, 21(8):19-25.
  • [50]Arblaster G, Brooks D, Hudson R, Petty M: Terminally ill patients’ expectations of nurses. Aust J Adv Nurs 1990, 7(3):34.
  • [51]Porter L, Keefe F, McBride C, Pollak K, Fish L, Garst J: Perceptions of patients’ self-efficacy for managing pain and lung cancer symptoms: correspondence between patients and family caregivers. Pain 2002, 98(1–2):169-178.
  • [52]Schumacher K, Koresawa S, West C, Hawkins C, Johnson C, Wais E, Dodd M, Paul S, Tripathy D, Koo P: Putting cancer pain management regimens into practice at home. J Pain Symptom Manage 2002, 23(5):369-382.
  文献评价指标  
  下载次数:26次 浏览次数:41次