来源:Orphanet Journal of Rare Diseases , 2021
作者:Amanda Mortensen;Mohit Jain;Thomas Butt;等
关键词:CLN2;Utility values;...
使用许可:CC BY
来源:Orphanet Journal of Rare Diseases , 2022
作者:Siu Hing Lo, Sarah Acaster, Sandra Nestler-Parr
关键词:Transthyretin amyloidosis;Caregiver burden;...
使用许可:CC BY