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  • × Orphanet Journal of Rare Disease
  • × Utility values
 全选  【符合条件的数据共：2条】

1 Investigating health-related quality of life in rare diseases: a case study in utility value determination for patients with CLN2 disease (neuronal ceroid lipofuscinosis type 2) [期刊论文]

来源：Orphanet Journal of Rare Diseases , 2021

作者:Amanda Mortensen;Mohit Jain;Thomas Butt;等

关键词:CLN2;Utility values;...

使用许可:CC BY

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2 A survey exploring caregiver burden and health-related quality of life in hereditary transthyretin amyloidosis [期刊论文]

来源：Orphanet Journal of Rare Diseases , 2022

作者:Siu Hing Lo, Sarah Acaster, Sandra Nestler-Parr

关键词:Transthyretin amyloidosis;Caregiver burden;...

使用许可:CC BY

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