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  • × Health and Quality of Life Outcome
  • × Duchenne muscular dystrophy
 全选  【符合条件的数据共：8条】

1 Factors associated with the health-related quality of life among people with Duchenne muscular dystrophy: a study using the Health Utilities Index (HUI) [期刊论文]

来源：Health and Quality of Life Outcomes , 2022

作者:Basia Rogula;Shelagh M. Szabo;David Feeny;等

关键词:Utility;Duchenne muscular dystrophy;...

使用许可:Unknown

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2 Quality of life and informal care burden associated with duchenne muscular dystrophy in Portugal: the COIDUCH study [期刊论文]

来源：Health and Quality of Life Outcomes , 2022

作者:Rita Alves;Jorge Felix;João Almeida;等

关键词:Duchenne muscular dystrophy;Disease progression;...

使用许可:Unknown

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3 Development of a Clinical Global Impression of Change (CGI-C) and a Caregiver Global Impression of Change (CaGI-C) measure for ambulant individuals with Duchenne muscular dystrophy [期刊论文]

来源：Health and Quality of Life Outcomes , 2021

作者:Claire Trennery;Rob Arbuckle;Rebecca Hall;等

关键词:Duchenne muscular dystrophy;Quality of life;...

使用许可:CC BY

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4 Development of a Clinical Global Impression of Change (CGI-C) and a Caregiver Global Impression of Change (CaGI-C) measure for ambulant individuals with Duchenne muscular dystrophy [期刊论文]

来源：Health and Quality of Life Outcomes , 19卷 , 2021

作者:Claire Trennery;Rob Arbuckle;Rebecca Hall;等

关键词:Duchenne muscular dystrophy;Quality of life;...

使用许可:Unknown

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5 Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources [期刊论文]

来源：Health and Quality of Life Outcomes , 2017

作者:Jacob Oleson;Molly Lamb;Lowell McKirgan;等

关键词:Becker muscular dystrophy;Caregivers;...

使用许可:CC BY

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6 Impact of three genetic musculoskeletal diseases: a comparative synthesis of achondroplasia, Duchenne muscular dystrophy and osteogenesis imperfecta [期刊论文]

来源：Health and Quality of Life Outcomes , 2014

作者:Christophe Bedos;Frank Rauch;Erin Douglas;等

关键词:Rare genetic diseases;Societal and family impact;...

使用许可:CC BY

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