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  • × rare diseases
 全选  【符合条件的数据共：118条】

1 Digital health solution for monitoring and surveillance of Amyotrophic Lateral Sclerosis in Brazil [期刊论文]

来源：Frontiers in Public Health , 2023

作者:João Paulo Queiroz dos Santos;Thaisa Lima;Jorge Henriques;等

关键词:public health;rare diseases;...

使用许可:Unknown

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2 Editorial: Addressing the sustainable development goals “leave no one behind” promise: migration and health [期刊论文]

来源：Frontiers in Public Health , 2023

作者:Stefano Orlando;Wai-kit Ming;Shanquan Chen;等

关键词:migration;urban-rural dual division system;...

使用许可:Unknown

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3 Undiagnosed diseases: Needs and opportunities in 20 countries participating in the Undiagnosed Diseases Network International [期刊论文]

来源：Frontiers in Public Health , 2023

作者:Yasemin Alanay;Ugur Ozbek;Maleeha Azam;等

关键词:Undiagnosed Diseases;rare diseases;...

使用许可:Unknown

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4 Rarecare: A policy perspective on the burden of rare diseases on caregivers in Latin America [期刊论文]

来源：Frontiers in Public Health , 2023

作者:Mariana Rico-Restrepo;Angela Marie Jansen;Ariadne Guimarães Dias;等

关键词:caregiver;rare disease caregiver;...

使用许可:Unknown

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5 Long-term use of somatostatin analogs for chronic gastrointestinal bleeding in hereditary hemorrhagic telangiectasia [期刊论文]

来源：Frontiers in Medicine , 2023

作者:Ana Berrozpe;Miguel Ángel Sánchez-Corral;Enric Gamundí;等

关键词:hereditary hemorrhagic telangectasia;gastrointestinal bleeding;...

使用许可:Unknown

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6 Access to medicines for rare diseases: A European regulatory roadmap for academia [期刊论文]

来源：Frontiers in Pharmacology , 2023

作者:Anna M. G. Pasmooij;Saco J. de Visser;Hendrika C. Post;等

关键词:regulatory framework;patient access;...

使用许可:Unknown

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