‘Home sick’: exploring the impact of receiving a volunteer unrelated donor haematopoietic stem cell transplant far from home on the perceived coping of patients residing in the NHS Highland region
This project aims to gather the experiences of patients living within the NHS Highland region who have travelled to Glasgow to receive their allogeneic haematopoietic stem cell transplant.It examines the effects of travelling long distances and remaining away from home for treatment, on coping.The project used a qualitative design, looking retrospectively at participants’ experiences. Semi-structured interviews were audio-recorded and transcribed verbatim before being analysed using Interpretive Phenomenological Analysis.Results of the analysis indicated ten super-ordinate themes: Impact of physical health, ward life, “there is no place like home”, social support is key, the known versus the unknown, technology, the role of thoughts, change of environment, moving along a journey and the direct consequences of the distance.The results enhance understanding of the factors and resources which can aid patients’ coping.This information will be used to help prepare future patients embarking on their own treatment journey, as well as guiding staff as to how they can best prepare patients and support them to cope during treatment.
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‘Home sick’: exploring the impact of receiving a volunteer unrelated donor haematopoietic stem cell transplant far from home on the perceived coping of patients residing in the NHS Highland region