Background:Inflammatory Bowel Disease is a life-long condition which involves inflammation of the gastrointestinal tract. Unfortunately, a large proportion of people who do not respond to medication have to undergo surgery. This involves the removal of an inflamed section of the digestive system which may require the creation of a stoma. Making the decision to have stoma surgery can be distressing and problematic, particularly within the adolescent population.Objectives:The aims of this study were to explore the decision-making process and pre-operative experiences involved in stoma surgery for adolescents with Inflammatory Bowel Disease.Design and Method:A retrospective qualitative design was used. Recruitment used purposeful sampling and semi-structured interviews were completed and transcribed. Data were subject to Thematic Analysis. Participants:Sixteen adolescents with Inflammatory Bowel Disease who had undergone stoma surgery were invited to participate in the study. Seven participants were involved in the final sample (at time of interview, age range 13-18years old).Results:Three super ordinate themes emerged from analysis and an analytic narrative was constructed under the headings ‘Living with Inflammatory Bowel Disease’, ‘Journey to Surgery’ and ‘Support Network’.Conclusions:The decision-making process appears to be most successful when an adolescent has time to prepare and is provided with appropriate information to ensure understanding in order that they are able to take a balanced perspective and make an informed decision. The involvement of a peer appears crucial throughout this process by enhancing mutual understanding.
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Exploring the decision-making process in stoma surgery for adolescents with inflammatory bowel disease: a thematic analysis
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