Attitudes and dilemmas of caregivers supporting people with intellectual disabilities who have diabetes

PATIENT EDUCATION AND COUNSELING

卷:87

Article

Cardol, Mieke¹  Rijken, Mieke¹  Lantman-de Valk, Henny van Schrojenstein² 

[1] NIVEL Netherlands Inst Hlth Serv Res, NL-3500 BN Utrecht, Netherlands

[2] Radboud Univ Nijmegen, Med Ctr, Dept Primary & Community Care, Nijmegen, Netherlands

关键词: Intellectual disability;    Diabetes;    Caregivers;    Self-management;    Support;   

DOI  :  10.1016/j.pec.2011.11.010

来源: Elsevier

【 摘 要 】

Objective: To explore how professional caregivers in communal living arrangements support people with a mild or moderate intellectual disability (ID) who have diabetes. Methods: A qualitative study, 13 caregivers participated in semi-structured interviews. Results: Professional caregiver support in diabetes care is almost solely directed towards administering medication and controlling food intake. Caregivers want to provide person-centered care but are hindered by a conflict between protecting a client's health and at the same time respecting autonomy. None of the caregivers had received training in supporting self-management; their knowledge about diabetes is limited. The few that engaged their client in self-management stressed the importance of a positive and collaborative approach. Conclusion: This study provides a first insight into the challenges that professional caregivers experience when a client with ID has diabetes. More education for caregivers seems needed. Self-management support is likely to benefit from consensus among caregivers about what comprises person-centered care and self-management in people with ID who have a chronic disease. Practice implications: Increasing caregivers' awareness of the importance of supporting self-management in people with ID and a chronic disease is essential. Discussing practice examples in the light of existing knowledge about developing autonomy will contribute to their awareness. (C) 2011 Elsevier Ireland Ltd. All rights reserved.

【 授权许可】

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